Cargando…

Evaluating cancer genetic services in a safety net system: overcoming barriers for a lasting impact beyond the CHARM research project

Underserved patients face substantial barriers to receiving cancer genetic services. The Cancer Health Assessments Reaching Many (CHARM) study evaluated ways to increase access to genetic testing for individuals in underserved populations at risk for hereditary cancer syndromes (HCS). Here, we repor...

Descripción completa

Detalles Bibliográficos
Autores principales:	Okuyama, Sonia, White, Larissa L., Anderson, Katherine P., Medina, Elizabeth, Deutsch, Sonia, Ransom, Chelese, Jackson, Paige, Kauffman, Tia L., Mittendorf, Kathleen F., Leo, Michael C., Bulkley, Joanna E., Wilfond, Benjamin S., Goddard, Katrina AB, Feigelson, Heather Spencer
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer Berlin Heidelberg 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10271961/ https://www.ncbi.nlm.nih.gov/pubmed/37126135 http://dx.doi.org/10.1007/s12687-023-00647-x

Ejemplares similares

Risk management actions following genetic testing in the Cancer Health Assessments Reaching Many (CHARM) Study: A prospective cohort study
por: Guo, Boya, et al.
Publicado: (2023)

Integrating stakeholder feedback in translational genomics research: An ethnographic analysis of a study protocol’s evolution
por: Kraft, Stephanie A., et al.
Publicado: (2020)

Adaptation and early implementation of the PREdiction model for gene mutations (PREMM(5)™) for lynch syndrome risk assessment in a diverse population
por: Mittendorf, Kathleen F., et al.
Publicado: (2021)

It’s complicated: criteria for policy decisions for the clinical integration of genome-scale sequencing for reproductive decision making
por: Wilfond, Benjamin S, et al.
Publicado: (2015)

Reliability of KRAS mutation testing in metastatic colorectal cancer patients across five laboratories
por: Feigelson, Heather Spencer, et al.
Publicado: (2012)

Identifying patients with Lynch syndrome using a universal tumor screening program in an integrated healthcare system
por: Crain, Philip R., et al.
Publicado: (2022)

Systematic review of the predictive effect of MSI status in colorectal cancer patients undergoing 5FU-based chemotherapy
por: Webber, Elizabeth M, et al.
Publicado: (2015)

Design of a randomized controlled trial for genomic carrier screening in healthy patients seeking preconception genetic testing
por: Kauffman, Tia L., et al.
Publicado: (2016)

Assessment of willingness to pay for expanded carrier screening among women and couples undergoing preconception carrier screening
por: Clarke, Elizabeth V., et al.
Publicado: (2018)

The NextGen Study: patient motivation for participation in genome sequencing for carrier status
por: Kauffman, Tia L., et al.
Publicado: (2017)

Overcoming the challenge of the last mile
por: Faal, Hannah, et al.
Publicado: (2022)

“Is It Worth Knowing?” Focus Group Participants’ Perceived Utility of Genomic Preconception Carrier Screening
por: Schneider, Jennifer L., et al.
Publicado: (2015)

Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews
por: Mittendorf, Kathleen F., et al.
Publicado: (2022)

Time Costs for Genetic Counseling in Preconception Carrier Screening with Genome Sequencing
por: Lynch, Frances L., et al.
Publicado: (2018)

Genome sequencing and carrier testing: decisions on categorization and whether to disclose results of carrier testing
por: Himes, Patricia, et al.
Publicado: (2017)

The evolving landscape of expanded carrier screening: challenges and opportunities
por: Kraft, Stephanie A., et al.
Publicado: (2018)

Retrospective assessment of barriers and access to genetic services for hereditary cancer syndromes in an integrated health care delivery system
por: Muessig, Kristin R., et al.
Publicado: (2022)

Qualitative study on the use and maintenance of long-lasting insecticidal nets (LLINs) in Bouaké (Côte d’Ivoire), 17 months after the last mass distribution campaign
por: N’Guessan, Gnagoran Kouakou Daniel, et al.
Publicado: (2022)

Evaluation of bio-efficacy and durability of long-lasting insecticidal nets distributed by malaria elimination programme in Eastern India
por: Sahu, Sudhansu Sekhar, et al.
Publicado: (2020)

Editorial—The Last Post
por: Goddard, Paul
Publicado: (1992)

Evaluation of the durability of long‐lasting insecticidal nets in Guatemala
por: Castellanos, María Eugenia, et al.
Publicado: (2021)

Durability of long-lasting insecticidal nets (LLINs) in Ethiopia
por: Hiruy, Honelgn Nahusenay, et al.
Publicado: (2023)

Evaluation of the durability and use of long‐lasting insecticidal nets in Nicaragua
por: Villalta, Emperatriz Lugo, et al.
Publicado: (2021)

Phase III evaluation of the insecticidal efficacy and durability of a deltamethrin-treated polypropylene long-lasting net LifeNet®, in comparison with long-lasting nets made from polyester and polyethylene: study protocol
por: Tungu, Patrick, et al.
Publicado: (2016)

Monitoring long-lasting insecticidal net (LLIN) durability to validate net serviceable life assumptions, in Rwanda
por: Hakizimana, Emmanuel, et al.
Publicado: (2014)

Planning long lasting insecticide treated net campaigns: should households’ existing nets be taken into account?
por: Yukich, Joshua, et al.
Publicado: (2013)

Long-lasting insecticidal nets in Zambia: a cross-sectional analysis of net integrity and insecticide content
por: Craig, Allen S., et al.
Publicado: (2015)

Scrapie Control in EU Goat Population: Has the Last Gap Been Overcome?
por: Migliore, Sergio, et al.
Publicado: (2020)

Traditional Nets Interfere with the Uptake of Long-Lasting Insecticidal Nets in the Peruvian Amazon: The Relevance of Net Preference for Achieving High Coverage and Use
por: Grietens, Koen Peeters, et al.
Publicado: (2013)

Factors Associated with Coverage and Usage of Long-Lasting Insecticidal Nets in Madagascar
por: Thawani, Neeta, et al.
Publicado: (2009)

Evaluation of Interceptor long-lasting insecticidal nets in eight communities in Liberia
por: Banek, Kristin, et al.
Publicado: (2010)

A longitudinal study of the durability of long-lasting insecticidal nets in Zambia
por: Tan, Kathrine R., et al.
Publicado: (2016)

The causes of holes and loss of physical integrity in long‐lasting insecticidal nets
por: Wheldrake, Amy, et al.
Publicado: (2021)

The effect of long-lasting insecticidal nets (LLINs) physical integrity on utilization
por: Hiruy, Honelgn Nahusenay, et al.
Publicado: (2021)

Creating interventions to transition long-lasting insecticide net distribution in Ghana
por: Glozah, Franklin, et al.
Publicado: (2022)

A Meta-Regression Analysis of the Effectiveness of Mosquito Nets for Malaria Control: The Value of Long-Lasting Insecticide Nets
por: Yang, Gi-geun, et al.
Publicado: (2018)

Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol
por: Kauffman, Tia L., et al.
Publicado: (2021)

A case for expanding carrier testing to include actionable X‐linked disorders
por: Rope, Alan F., et al.
Publicado: (2018)

Efficacy evaluation of Veeralin LN, a PBO-incorporated alpha-cypermethrin long-lasting insecticidal net against Anopheles culicifacies in experimental huts in Odisha State
por: Kasinathan, Gunasekaran, et al.
Publicado: (2020)

Charm, après-charm, and beyond
por: Ellis, Jonathan Richard
Publicado: (1977)

Cannot write session to /tmp/vufind_sessions/sess_e4t1s3s1sloqh02bacd6kmnrvk