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Iranian clinical practice guideline for amyotrophic lateral sclerosis
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive neurodegeneration involving motor neurons. The 3–5 years that patients have to live is marked by day-to-day loss of motor and sometimes cognitive abilities. Enormous amounts of healthcare services and resources are necessary to support pat...
Autores principales: | , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10272856/ https://www.ncbi.nlm.nih.gov/pubmed/37333000 http://dx.doi.org/10.3389/fneur.2023.1154579 |
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author | Boostani, Reza Olfati, Nahid Shamshiri, Hosein Salimi, Zanireh Fatehi, Farzad Hedjazi, Seyed Arya Fakharian, Atefeh Ghasemi, Majid Okhovat, Ali Asghar Basiri, Keivan Haghi Ashtiani, Bahram Ansari, Behnaz Raissi, Gholam Reza Khatoonabadi, Seyed Ahmadreza Sarraf, Payam Movahed, Sara Panahi, Akram Ziaadini, Bentolhoda Yazdchi, Mohammad Bakhtiyari, Jalal Nafissi, Shahriar |
author_facet | Boostani, Reza Olfati, Nahid Shamshiri, Hosein Salimi, Zanireh Fatehi, Farzad Hedjazi, Seyed Arya Fakharian, Atefeh Ghasemi, Majid Okhovat, Ali Asghar Basiri, Keivan Haghi Ashtiani, Bahram Ansari, Behnaz Raissi, Gholam Reza Khatoonabadi, Seyed Ahmadreza Sarraf, Payam Movahed, Sara Panahi, Akram Ziaadini, Bentolhoda Yazdchi, Mohammad Bakhtiyari, Jalal Nafissi, Shahriar |
author_sort | Boostani, Reza |
collection | PubMed |
description | Amyotrophic lateral sclerosis (ALS) is a rapidly progressive neurodegeneration involving motor neurons. The 3–5 years that patients have to live is marked by day-to-day loss of motor and sometimes cognitive abilities. Enormous amounts of healthcare services and resources are necessary to support patients and their caregivers during this relatively short but burdensome journey. Organization and management of these resources need to best meet patients' expectations and health system efficiency mandates. This can only occur in the setting of multidisciplinary ALS clinics which are known as the gold standard of ALS care worldwide. To introduce this standard to the care of Iranian ALS patients, which is an inevitable quality milestone, a national ALS clinical practice guideline is the necessary first step. The National ALS guideline will serve as the knowledge base for the development of local clinical pathways to guide patient journeys in multidisciplinary ALS clinics. To this end, we gathered a team of national neuromuscular experts as well as experts in related specialties necessary for delivering multidisciplinary care to ALS patients to develop the Iranian ALS clinical practice guideline. Clinical questions were prepared in the Patient, Intervention, Comparison, and Outcome (PICO) format to serve as a guide for the literature search. Considering the lack of adequate national/local studies at this time, a consensus-based approach was taken to evaluate the quality of the retrieved evidence and summarize recommendations. |
format | Online Article Text |
id | pubmed-10272856 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-102728562023-06-17 Iranian clinical practice guideline for amyotrophic lateral sclerosis Boostani, Reza Olfati, Nahid Shamshiri, Hosein Salimi, Zanireh Fatehi, Farzad Hedjazi, Seyed Arya Fakharian, Atefeh Ghasemi, Majid Okhovat, Ali Asghar Basiri, Keivan Haghi Ashtiani, Bahram Ansari, Behnaz Raissi, Gholam Reza Khatoonabadi, Seyed Ahmadreza Sarraf, Payam Movahed, Sara Panahi, Akram Ziaadini, Bentolhoda Yazdchi, Mohammad Bakhtiyari, Jalal Nafissi, Shahriar Front Neurol Neurology Amyotrophic lateral sclerosis (ALS) is a rapidly progressive neurodegeneration involving motor neurons. The 3–5 years that patients have to live is marked by day-to-day loss of motor and sometimes cognitive abilities. Enormous amounts of healthcare services and resources are necessary to support patients and their caregivers during this relatively short but burdensome journey. Organization and management of these resources need to best meet patients' expectations and health system efficiency mandates. This can only occur in the setting of multidisciplinary ALS clinics which are known as the gold standard of ALS care worldwide. To introduce this standard to the care of Iranian ALS patients, which is an inevitable quality milestone, a national ALS clinical practice guideline is the necessary first step. The National ALS guideline will serve as the knowledge base for the development of local clinical pathways to guide patient journeys in multidisciplinary ALS clinics. To this end, we gathered a team of national neuromuscular experts as well as experts in related specialties necessary for delivering multidisciplinary care to ALS patients to develop the Iranian ALS clinical practice guideline. Clinical questions were prepared in the Patient, Intervention, Comparison, and Outcome (PICO) format to serve as a guide for the literature search. Considering the lack of adequate national/local studies at this time, a consensus-based approach was taken to evaluate the quality of the retrieved evidence and summarize recommendations. Frontiers Media S.A. 2023-06-02 /pmc/articles/PMC10272856/ /pubmed/37333000 http://dx.doi.org/10.3389/fneur.2023.1154579 Text en Copyright © 2023 Boostani, Olfati, Shamshiri, Salimi, Fatehi, Hedjazi, Fakharian, Ghasemi, Okhovat, Basiri, Haghi Ashtiani, Ansari, Raissi, Khatoonabadi, Sarraf, Movahed, Panahi, Ziaadini, Yazdchi, Bakhtiyari and Nafissi. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Neurology Boostani, Reza Olfati, Nahid Shamshiri, Hosein Salimi, Zanireh Fatehi, Farzad Hedjazi, Seyed Arya Fakharian, Atefeh Ghasemi, Majid Okhovat, Ali Asghar Basiri, Keivan Haghi Ashtiani, Bahram Ansari, Behnaz Raissi, Gholam Reza Khatoonabadi, Seyed Ahmadreza Sarraf, Payam Movahed, Sara Panahi, Akram Ziaadini, Bentolhoda Yazdchi, Mohammad Bakhtiyari, Jalal Nafissi, Shahriar Iranian clinical practice guideline for amyotrophic lateral sclerosis |
title | Iranian clinical practice guideline for amyotrophic lateral sclerosis |
title_full | Iranian clinical practice guideline for amyotrophic lateral sclerosis |
title_fullStr | Iranian clinical practice guideline for amyotrophic lateral sclerosis |
title_full_unstemmed | Iranian clinical practice guideline for amyotrophic lateral sclerosis |
title_short | Iranian clinical practice guideline for amyotrophic lateral sclerosis |
title_sort | iranian clinical practice guideline for amyotrophic lateral sclerosis |
topic | Neurology |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10272856/ https://www.ncbi.nlm.nih.gov/pubmed/37333000 http://dx.doi.org/10.3389/fneur.2023.1154579 |
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