Cargando…

Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study

AIM: To explore the experiences and needs of family members during the course of COVID‐19 critical illness from onset to rehabilitation. DESIGN: An exploratory qualitative study. METHODS: Twelve family members of surviving critically ill COVID‐19 patients and restricted from visiting the patients, w...

Descripción completa

Detalles Bibliográficos
Autores principales: Berntzen, Helene, Lind, Ranveig, Alfheim, Hanne, Tøien, Kirsti
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10277452/
https://www.ncbi.nlm.nih.gov/pubmed/37005711
http://dx.doi.org/10.1002/nop2.1734
_version_ 1785060283917533184
author Berntzen, Helene
Lind, Ranveig
Alfheim, Hanne
Tøien, Kirsti
author_facet Berntzen, Helene
Lind, Ranveig
Alfheim, Hanne
Tøien, Kirsti
author_sort Berntzen, Helene
collection PubMed
description AIM: To explore the experiences and needs of family members during the course of COVID‐19 critical illness from onset to rehabilitation. DESIGN: An exploratory qualitative study. METHODS: Twelve family members of surviving critically ill COVID‐19 patients and restricted from visiting the patients, were interviewed digitally. Reflexive thematic analysis was used. RESULTS: Three themes were generated from the data; ‘Experiencing a double burden’, ‘Becoming an insignificant other’ and ‘Regaining significance’. Family members were often ill themselves, which represented an extra burden when the patient deteriorated. From admission, the family members became bystanders, deprived of most contact with the patients, as communication and information from the intensive care unit appeared unstructured and haphazard. However, when patients were discharged, great responsibility was placed on the family members.
format Online
Article
Text
id pubmed-10277452
institution National Center for Biotechnology Information
language English
publishDate 2023
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-102774522023-06-20 Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study Berntzen, Helene Lind, Ranveig Alfheim, Hanne Tøien, Kirsti Nurs Open Empirical Research Qualitative AIM: To explore the experiences and needs of family members during the course of COVID‐19 critical illness from onset to rehabilitation. DESIGN: An exploratory qualitative study. METHODS: Twelve family members of surviving critically ill COVID‐19 patients and restricted from visiting the patients, were interviewed digitally. Reflexive thematic analysis was used. RESULTS: Three themes were generated from the data; ‘Experiencing a double burden’, ‘Becoming an insignificant other’ and ‘Regaining significance’. Family members were often ill themselves, which represented an extra burden when the patient deteriorated. From admission, the family members became bystanders, deprived of most contact with the patients, as communication and information from the intensive care unit appeared unstructured and haphazard. However, when patients were discharged, great responsibility was placed on the family members. John Wiley and Sons Inc. 2023-04-02 /pmc/articles/PMC10277452/ /pubmed/37005711 http://dx.doi.org/10.1002/nop2.1734 Text en © 2023 The Authors. Nursing Open published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Empirical Research Qualitative
Berntzen, Helene
Lind, Ranveig
Alfheim, Hanne
Tøien, Kirsti
Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study
title Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study
title_full Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study
title_fullStr Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study
title_full_unstemmed Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study
title_short Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study
title_sort coping in times of disruption and deprivation—experiences of family members during covid‐19 patients' critical illness: a qualitative study
topic Empirical Research Qualitative
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10277452/
https://www.ncbi.nlm.nih.gov/pubmed/37005711
http://dx.doi.org/10.1002/nop2.1734
work_keys_str_mv AT berntzenhelene copingintimesofdisruptionanddeprivationexperiencesoffamilymembersduringcovid19patientscriticalillnessaqualitativestudy
AT lindranveig copingintimesofdisruptionanddeprivationexperiencesoffamilymembersduringcovid19patientscriticalillnessaqualitativestudy
AT alfheimhanne copingintimesofdisruptionanddeprivationexperiencesoffamilymembersduringcovid19patientscriticalillnessaqualitativestudy
AT tøienkirsti copingintimesofdisruptionanddeprivationexperiencesoffamilymembersduringcovid19patientscriticalillnessaqualitativestudy