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Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study
AIM: To explore the experiences and needs of family members during the course of COVID‐19 critical illness from onset to rehabilitation. DESIGN: An exploratory qualitative study. METHODS: Twelve family members of surviving critically ill COVID‐19 patients and restricted from visiting the patients, w...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10277452/ https://www.ncbi.nlm.nih.gov/pubmed/37005711 http://dx.doi.org/10.1002/nop2.1734 |
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author | Berntzen, Helene Lind, Ranveig Alfheim, Hanne Tøien, Kirsti |
author_facet | Berntzen, Helene Lind, Ranveig Alfheim, Hanne Tøien, Kirsti |
author_sort | Berntzen, Helene |
collection | PubMed |
description | AIM: To explore the experiences and needs of family members during the course of COVID‐19 critical illness from onset to rehabilitation. DESIGN: An exploratory qualitative study. METHODS: Twelve family members of surviving critically ill COVID‐19 patients and restricted from visiting the patients, were interviewed digitally. Reflexive thematic analysis was used. RESULTS: Three themes were generated from the data; ‘Experiencing a double burden’, ‘Becoming an insignificant other’ and ‘Regaining significance’. Family members were often ill themselves, which represented an extra burden when the patient deteriorated. From admission, the family members became bystanders, deprived of most contact with the patients, as communication and information from the intensive care unit appeared unstructured and haphazard. However, when patients were discharged, great responsibility was placed on the family members. |
format | Online Article Text |
id | pubmed-10277452 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-102774522023-06-20 Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study Berntzen, Helene Lind, Ranveig Alfheim, Hanne Tøien, Kirsti Nurs Open Empirical Research Qualitative AIM: To explore the experiences and needs of family members during the course of COVID‐19 critical illness from onset to rehabilitation. DESIGN: An exploratory qualitative study. METHODS: Twelve family members of surviving critically ill COVID‐19 patients and restricted from visiting the patients, were interviewed digitally. Reflexive thematic analysis was used. RESULTS: Three themes were generated from the data; ‘Experiencing a double burden’, ‘Becoming an insignificant other’ and ‘Regaining significance’. Family members were often ill themselves, which represented an extra burden when the patient deteriorated. From admission, the family members became bystanders, deprived of most contact with the patients, as communication and information from the intensive care unit appeared unstructured and haphazard. However, when patients were discharged, great responsibility was placed on the family members. John Wiley and Sons Inc. 2023-04-02 /pmc/articles/PMC10277452/ /pubmed/37005711 http://dx.doi.org/10.1002/nop2.1734 Text en © 2023 The Authors. Nursing Open published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Empirical Research Qualitative Berntzen, Helene Lind, Ranveig Alfheim, Hanne Tøien, Kirsti Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study |
title | Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study |
title_full | Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study |
title_fullStr | Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study |
title_full_unstemmed | Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study |
title_short | Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study |
title_sort | coping in times of disruption and deprivation—experiences of family members during covid‐19 patients' critical illness: a qualitative study |
topic | Empirical Research Qualitative |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10277452/ https://www.ncbi.nlm.nih.gov/pubmed/37005711 http://dx.doi.org/10.1002/nop2.1734 |
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