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Death doula working practices and models of care: the views of death doula training organisations

BACKGROUND: The role of death doula has emerged in recent years, arguably as a result of overwhelming demands on carers, healthcare professionals and service providers in end-of-life care. Death doulas work independently without governing oversight and enact the role in various ways. The main driver...

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Autores principales: Rawlings, Deb, Miller-Lewis, Lauren, Tieman, Jennifer, Swetenham, Kate
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10288789/
https://www.ncbi.nlm.nih.gov/pubmed/37353818
http://dx.doi.org/10.1186/s12904-023-01200-w
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author Rawlings, Deb
Miller-Lewis, Lauren
Tieman, Jennifer
Swetenham, Kate
author_facet Rawlings, Deb
Miller-Lewis, Lauren
Tieman, Jennifer
Swetenham, Kate
author_sort Rawlings, Deb
collection PubMed
description BACKGROUND: The role of death doula has emerged in recent years, arguably as a result of overwhelming demands on carers, healthcare professionals and service providers in end-of-life care. Death doulas work independently without governing oversight and enact the role in various ways. The main driver of this evolving role is the organisations that train them. The aim of this study was to examine death doula training organisations’ views with regard to DD business models, incorporating the death doula role into other existing models of care, and role enactment. METHODS: An electronic survey was administered to 15 death doula training organisations in 5 countries asking additionally that they disseminate the survey. Responses were received from 13 organisations, based in Australia (n = 4), the US (n = 4), Canada (n = 2), the UK (n = 1), Sweden (n = 1) and New Zealand (n = 1). This paper provides the qualitative findings from four open-text questions posed within the survey related to models of care. RESULTS: Qualitative data analysis was inductive, themes were determined in relation to: (1) standardised business model for death doulas, (2) death doulas incorporated into existing models of care or existing funding options, (3) death doulas who volunteer their services rather than charge money, and (4) role specialisation such as has occurred with birth doulas. CONCLUSIONS: The death doula role has the potential to be formally recognised in the future under national registration schemes, accompanied by death doula training required via certification. Until such time the death doula role will continue to evolve much as the birth doula role has, organically and unstructured. How and if death doulas are incorporated into existing models of health or social care remains to be seen as the organisations that train them push for independence, flexibility and fiscal independence.
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spelling pubmed-102887892023-06-24 Death doula working practices and models of care: the views of death doula training organisations Rawlings, Deb Miller-Lewis, Lauren Tieman, Jennifer Swetenham, Kate BMC Palliat Care Research BACKGROUND: The role of death doula has emerged in recent years, arguably as a result of overwhelming demands on carers, healthcare professionals and service providers in end-of-life care. Death doulas work independently without governing oversight and enact the role in various ways. The main driver of this evolving role is the organisations that train them. The aim of this study was to examine death doula training organisations’ views with regard to DD business models, incorporating the death doula role into other existing models of care, and role enactment. METHODS: An electronic survey was administered to 15 death doula training organisations in 5 countries asking additionally that they disseminate the survey. Responses were received from 13 organisations, based in Australia (n = 4), the US (n = 4), Canada (n = 2), the UK (n = 1), Sweden (n = 1) and New Zealand (n = 1). This paper provides the qualitative findings from four open-text questions posed within the survey related to models of care. RESULTS: Qualitative data analysis was inductive, themes were determined in relation to: (1) standardised business model for death doulas, (2) death doulas incorporated into existing models of care or existing funding options, (3) death doulas who volunteer their services rather than charge money, and (4) role specialisation such as has occurred with birth doulas. CONCLUSIONS: The death doula role has the potential to be formally recognised in the future under national registration schemes, accompanied by death doula training required via certification. Until such time the death doula role will continue to evolve much as the birth doula role has, organically and unstructured. How and if death doulas are incorporated into existing models of health or social care remains to be seen as the organisations that train them push for independence, flexibility and fiscal independence. BioMed Central 2023-06-23 /pmc/articles/PMC10288789/ /pubmed/37353818 http://dx.doi.org/10.1186/s12904-023-01200-w Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Rawlings, Deb
Miller-Lewis, Lauren
Tieman, Jennifer
Swetenham, Kate
Death doula working practices and models of care: the views of death doula training organisations
title Death doula working practices and models of care: the views of death doula training organisations
title_full Death doula working practices and models of care: the views of death doula training organisations
title_fullStr Death doula working practices and models of care: the views of death doula training organisations
title_full_unstemmed Death doula working practices and models of care: the views of death doula training organisations
title_short Death doula working practices and models of care: the views of death doula training organisations
title_sort death doula working practices and models of care: the views of death doula training organisations
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10288789/
https://www.ncbi.nlm.nih.gov/pubmed/37353818
http://dx.doi.org/10.1186/s12904-023-01200-w
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