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Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia

INTRODUCTION: Dementia caregiving is complex and disproportionally burdens caregivers living in rural areas due to fewer resources and formal support systems. There is an immediate need to identify effective, scalable, and accessible online programs to support rural caregivers’ well-being. Building...

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Autores principales: Santoyo-Olsson, Jasmine, Lorig, Kate, Romo, Elizabeth Macias, Luzanilla, Maritza, Ramirez, Giselle Aguayo, Cheng, Jing, Chesla, Catherine, Covinsky, Kenneth E., Karliner, Leah, Thompson, Dolores Gallagher, Fahrenwald, Nancy, Yank, Veronica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10292579/
https://www.ncbi.nlm.nih.gov/pubmed/36057375
http://dx.doi.org/10.1016/j.cct.2022.106903
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author Santoyo-Olsson, Jasmine
Lorig, Kate
Romo, Elizabeth Macias
Luzanilla, Maritza
Ramirez, Giselle Aguayo
Cheng, Jing
Chesla, Catherine
Covinsky, Kenneth E.
Karliner, Leah
Thompson, Dolores Gallagher
Fahrenwald, Nancy
Yank, Veronica
author_facet Santoyo-Olsson, Jasmine
Lorig, Kate
Romo, Elizabeth Macias
Luzanilla, Maritza
Ramirez, Giselle Aguayo
Cheng, Jing
Chesla, Catherine
Covinsky, Kenneth E.
Karliner, Leah
Thompson, Dolores Gallagher
Fahrenwald, Nancy
Yank, Veronica
author_sort Santoyo-Olsson, Jasmine
collection PubMed
description INTRODUCTION: Dementia caregiving is complex and disproportionally burdens caregivers living in rural areas due to fewer resources and formal support systems. There is an immediate need to identify effective, scalable, and accessible online programs to support rural caregivers’ well-being. Building Better Caregivers (BBC), a possible solution, is an asynchronous online 6-week, interactive, and skills-building workshop developed for caregivers of persons with dementia. This research aims to assess the effectiveness and implementation of the BBC workshop when delivered among rural dementia caregivers in the United States. METHODS: A hybrid effectiveness and implementation trial applying mixed methods will be conducted in collaboration with local, state, and national partnering organizations. Eligible participants live in a rural area of the United States, give care at least 10 h a week for a family member or friend with dementia, and have internet access. Evaluation is based on the RE-AIM framework. Effectiveness outcomes are assessed using a randomized control trial. Caregivers are randomly assigned to the BBC workshop (intervention) or attention control group. Implementation outcomes are assessed using surveys and debriefing interviews from partnering organizations and participants. The study protocol including the study design, methods of recruitment and assessment, and outcomes are described. CONCLUSION: This is the first known study to evaluate both the effectiveness and implementation of a caregiver support intervention under real-world conditions in rural areas. If successful, this online workshop will be a practical and acceptable approach for promoting the health and well-being of geographically isolated rural dementia caregivers.
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spelling pubmed-102925792023-06-26 Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia Santoyo-Olsson, Jasmine Lorig, Kate Romo, Elizabeth Macias Luzanilla, Maritza Ramirez, Giselle Aguayo Cheng, Jing Chesla, Catherine Covinsky, Kenneth E. Karliner, Leah Thompson, Dolores Gallagher Fahrenwald, Nancy Yank, Veronica Contemp Clin Trials Article INTRODUCTION: Dementia caregiving is complex and disproportionally burdens caregivers living in rural areas due to fewer resources and formal support systems. There is an immediate need to identify effective, scalable, and accessible online programs to support rural caregivers’ well-being. Building Better Caregivers (BBC), a possible solution, is an asynchronous online 6-week, interactive, and skills-building workshop developed for caregivers of persons with dementia. This research aims to assess the effectiveness and implementation of the BBC workshop when delivered among rural dementia caregivers in the United States. METHODS: A hybrid effectiveness and implementation trial applying mixed methods will be conducted in collaboration with local, state, and national partnering organizations. Eligible participants live in a rural area of the United States, give care at least 10 h a week for a family member or friend with dementia, and have internet access. Evaluation is based on the RE-AIM framework. Effectiveness outcomes are assessed using a randomized control trial. Caregivers are randomly assigned to the BBC workshop (intervention) or attention control group. Implementation outcomes are assessed using surveys and debriefing interviews from partnering organizations and participants. The study protocol including the study design, methods of recruitment and assessment, and outcomes are described. CONCLUSION: This is the first known study to evaluate both the effectiveness and implementation of a caregiver support intervention under real-world conditions in rural areas. If successful, this online workshop will be a practical and acceptable approach for promoting the health and well-being of geographically isolated rural dementia caregivers. 2022-10 2022-08-31 /pmc/articles/PMC10292579/ /pubmed/36057375 http://dx.doi.org/10.1016/j.cct.2022.106903 Text en https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) ).
spellingShingle Article
Santoyo-Olsson, Jasmine
Lorig, Kate
Romo, Elizabeth Macias
Luzanilla, Maritza
Ramirez, Giselle Aguayo
Cheng, Jing
Chesla, Catherine
Covinsky, Kenneth E.
Karliner, Leah
Thompson, Dolores Gallagher
Fahrenwald, Nancy
Yank, Veronica
Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia
title Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia
title_full Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia
title_fullStr Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia
title_full_unstemmed Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia
title_short Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia
title_sort study protocol for a hybrid effectiveness-implementation trial of the building better caregivers online workshop for rural family/friend caregivers of people living with dementia
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10292579/
https://www.ncbi.nlm.nih.gov/pubmed/36057375
http://dx.doi.org/10.1016/j.cct.2022.106903
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