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Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations

Patient and public involvement in research is increasingly considered a cornerstone of good research practice, and the research community recognises people with lived experience as valuable stakeholders within the research process. European Respiratory Society (ERS) strongly encourages patient input...

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Autores principales: Coleman, Courtney, Fulton, Olivia, Boyd, Jeanette, Williams, Clare, Powell, Zena, Brightling, Christopher E., van den Berge, Maarten, Siddiqui, Salman, Powell, Pippa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10292774/
https://www.ncbi.nlm.nih.gov/pubmed/37378057
http://dx.doi.org/10.1183/20734735.0159-2022
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author Coleman, Courtney
Fulton, Olivia
Boyd, Jeanette
Williams, Clare
Powell, Zena
Brightling, Christopher E.
van den Berge, Maarten
Siddiqui, Salman
Powell, Pippa
author_facet Coleman, Courtney
Fulton, Olivia
Boyd, Jeanette
Williams, Clare
Powell, Zena
Brightling, Christopher E.
van den Berge, Maarten
Siddiqui, Salman
Powell, Pippa
author_sort Coleman, Courtney
collection PubMed
description Patient and public involvement in research is increasingly considered a cornerstone of good research practice, and the research community recognises people with lived experience as valuable stakeholders within the research process. European Respiratory Society (ERS) strongly encourages patient input into its research programme and scientific activities, working in partnership with the European Lung Foundation (ELF) to facilitate this. Based on the ERS and ELF experience and best practice in the field of patient and public involvement, we developed a set of principles to which future ERS and ELF collaborations should adhere. These principles provide guidance on how to address key challenges when planning and conducting patient and public involvement in order to develop successful partnerships with patients and drive forward patient-centred research.
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spelling pubmed-102927742023-06-27 Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations Coleman, Courtney Fulton, Olivia Boyd, Jeanette Williams, Clare Powell, Zena Brightling, Christopher E. van den Berge, Maarten Siddiqui, Salman Powell, Pippa Breathe (Sheff) Viewpoint Patient and public involvement in research is increasingly considered a cornerstone of good research practice, and the research community recognises people with lived experience as valuable stakeholders within the research process. European Respiratory Society (ERS) strongly encourages patient input into its research programme and scientific activities, working in partnership with the European Lung Foundation (ELF) to facilitate this. Based on the ERS and ELF experience and best practice in the field of patient and public involvement, we developed a set of principles to which future ERS and ELF collaborations should adhere. These principles provide guidance on how to address key challenges when planning and conducting patient and public involvement in order to develop successful partnerships with patients and drive forward patient-centred research. European Respiratory Society 2023-03 2023-04-11 /pmc/articles/PMC10292774/ /pubmed/37378057 http://dx.doi.org/10.1183/20734735.0159-2022 Text en Copyright ©ERS 2023 https://creativecommons.org/licenses/by-nc/4.0/Breathe articles are open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.
spellingShingle Viewpoint
Coleman, Courtney
Fulton, Olivia
Boyd, Jeanette
Williams, Clare
Powell, Zena
Brightling, Christopher E.
van den Berge, Maarten
Siddiqui, Salman
Powell, Pippa
Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
title Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
title_full Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
title_fullStr Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
title_full_unstemmed Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
title_short Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
title_sort principles of patient partnership: integrating patient perspectives into ers clinical research collaborations
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10292774/
https://www.ncbi.nlm.nih.gov/pubmed/37378057
http://dx.doi.org/10.1183/20734735.0159-2022
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