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Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment

This study was designed to advance our understanding of how feelings of empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European stud...

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Autores principales: Ziebuhr, Berit, Zanasi, Michele, Bueno Aguado, Yolanda, Losada Durán, Raquel, Dening, Tom, Tournier, Isabelle, Niedderer, Kristina, Diaz, Ana, Druschke, Diana, Almeida, Rosa, Holthoff-Detto, Vjera
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10298713/
https://www.ncbi.nlm.nih.gov/pubmed/37372667
http://dx.doi.org/10.3390/ijerph20126080
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author Ziebuhr, Berit
Zanasi, Michele
Bueno Aguado, Yolanda
Losada Durán, Raquel
Dening, Tom
Tournier, Isabelle
Niedderer, Kristina
Diaz, Ana
Druschke, Diana
Almeida, Rosa
Holthoff-Detto, Vjera
author_facet Ziebuhr, Berit
Zanasi, Michele
Bueno Aguado, Yolanda
Losada Durán, Raquel
Dening, Tom
Tournier, Isabelle
Niedderer, Kristina
Diaz, Ana
Druschke, Diana
Almeida, Rosa
Holthoff-Detto, Vjera
author_sort Ziebuhr, Berit
collection PubMed
description This study was designed to advance our understanding of how feelings of empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European study on mindful design for dementia. A qualitative thematic content analysis was performed to elicit the key features of the experience reported by the interviewees. Three overarching categories were identified: the first category ‘experiencing changes in personal life and coping with changes in life’ covered losses and coping strategies; the second category ‘retaining a sense of usefulness‘ included social participation and the need for activities with others; the third category ‘feeling empowered’ covered reflections on lifetime achievements, accomplishments in the present life, being in control and self-worth. Participants placed a strong emphasis on continuity and on the importance of making active decisions and meaningful social contributions. Empowerment within the person living with dementia was achieved through their interactions with their social environment, including the significance of communication about their needs and wishes and enabling shared decision-making and interactions with others in reciprocity.
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spelling pubmed-102987132023-06-28 Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment Ziebuhr, Berit Zanasi, Michele Bueno Aguado, Yolanda Losada Durán, Raquel Dening, Tom Tournier, Isabelle Niedderer, Kristina Diaz, Ana Druschke, Diana Almeida, Rosa Holthoff-Detto, Vjera Int J Environ Res Public Health Article This study was designed to advance our understanding of how feelings of empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European study on mindful design for dementia. A qualitative thematic content analysis was performed to elicit the key features of the experience reported by the interviewees. Three overarching categories were identified: the first category ‘experiencing changes in personal life and coping with changes in life’ covered losses and coping strategies; the second category ‘retaining a sense of usefulness‘ included social participation and the need for activities with others; the third category ‘feeling empowered’ covered reflections on lifetime achievements, accomplishments in the present life, being in control and self-worth. Participants placed a strong emphasis on continuity and on the importance of making active decisions and meaningful social contributions. Empowerment within the person living with dementia was achieved through their interactions with their social environment, including the significance of communication about their needs and wishes and enabling shared decision-making and interactions with others in reciprocity. MDPI 2023-06-08 /pmc/articles/PMC10298713/ /pubmed/37372667 http://dx.doi.org/10.3390/ijerph20126080 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Ziebuhr, Berit
Zanasi, Michele
Bueno Aguado, Yolanda
Losada Durán, Raquel
Dening, Tom
Tournier, Isabelle
Niedderer, Kristina
Diaz, Ana
Druschke, Diana
Almeida, Rosa
Holthoff-Detto, Vjera
Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment
title Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment
title_full Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment
title_fullStr Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment
title_full_unstemmed Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment
title_short Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment
title_sort living well with dementia: feeling empowered through interaction with their social environment
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10298713/
https://www.ncbi.nlm.nih.gov/pubmed/37372667
http://dx.doi.org/10.3390/ijerph20126080
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