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Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment
This study was designed to advance our understanding of how feelings of empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European stud...
Autores principales: | , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10298713/ https://www.ncbi.nlm.nih.gov/pubmed/37372667 http://dx.doi.org/10.3390/ijerph20126080 |
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author | Ziebuhr, Berit Zanasi, Michele Bueno Aguado, Yolanda Losada Durán, Raquel Dening, Tom Tournier, Isabelle Niedderer, Kristina Diaz, Ana Druschke, Diana Almeida, Rosa Holthoff-Detto, Vjera |
author_facet | Ziebuhr, Berit Zanasi, Michele Bueno Aguado, Yolanda Losada Durán, Raquel Dening, Tom Tournier, Isabelle Niedderer, Kristina Diaz, Ana Druschke, Diana Almeida, Rosa Holthoff-Detto, Vjera |
author_sort | Ziebuhr, Berit |
collection | PubMed |
description | This study was designed to advance our understanding of how feelings of empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European study on mindful design for dementia. A qualitative thematic content analysis was performed to elicit the key features of the experience reported by the interviewees. Three overarching categories were identified: the first category ‘experiencing changes in personal life and coping with changes in life’ covered losses and coping strategies; the second category ‘retaining a sense of usefulness‘ included social participation and the need for activities with others; the third category ‘feeling empowered’ covered reflections on lifetime achievements, accomplishments in the present life, being in control and self-worth. Participants placed a strong emphasis on continuity and on the importance of making active decisions and meaningful social contributions. Empowerment within the person living with dementia was achieved through their interactions with their social environment, including the significance of communication about their needs and wishes and enabling shared decision-making and interactions with others in reciprocity. |
format | Online Article Text |
id | pubmed-10298713 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-102987132023-06-28 Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment Ziebuhr, Berit Zanasi, Michele Bueno Aguado, Yolanda Losada Durán, Raquel Dening, Tom Tournier, Isabelle Niedderer, Kristina Diaz, Ana Druschke, Diana Almeida, Rosa Holthoff-Detto, Vjera Int J Environ Res Public Health Article This study was designed to advance our understanding of how feelings of empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European study on mindful design for dementia. A qualitative thematic content analysis was performed to elicit the key features of the experience reported by the interviewees. Three overarching categories were identified: the first category ‘experiencing changes in personal life and coping with changes in life’ covered losses and coping strategies; the second category ‘retaining a sense of usefulness‘ included social participation and the need for activities with others; the third category ‘feeling empowered’ covered reflections on lifetime achievements, accomplishments in the present life, being in control and self-worth. Participants placed a strong emphasis on continuity and on the importance of making active decisions and meaningful social contributions. Empowerment within the person living with dementia was achieved through their interactions with their social environment, including the significance of communication about their needs and wishes and enabling shared decision-making and interactions with others in reciprocity. MDPI 2023-06-08 /pmc/articles/PMC10298713/ /pubmed/37372667 http://dx.doi.org/10.3390/ijerph20126080 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Ziebuhr, Berit Zanasi, Michele Bueno Aguado, Yolanda Losada Durán, Raquel Dening, Tom Tournier, Isabelle Niedderer, Kristina Diaz, Ana Druschke, Diana Almeida, Rosa Holthoff-Detto, Vjera Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment |
title | Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment |
title_full | Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment |
title_fullStr | Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment |
title_full_unstemmed | Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment |
title_short | Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment |
title_sort | living well with dementia: feeling empowered through interaction with their social environment |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10298713/ https://www.ncbi.nlm.nih.gov/pubmed/37372667 http://dx.doi.org/10.3390/ijerph20126080 |
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