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Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire

BACKGROUND: Illness in a child with cardiac disease causes stress, brings additional responsibilities, reorganizes family life, and changes the functioning of the family. AIM: This study aimed to validate a new questionnaire evaluating the life situations of caregivers/parents of children with conge...

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Autores principales: Kolarczyk, Ewelina, Morka, Aleksandra, Barański, Kamil, Szydłowski, Lesław
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10311238/
https://www.ncbi.nlm.nih.gov/pubmed/37397292
http://dx.doi.org/10.3389/fpsyg.2023.1194031
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author Kolarczyk, Ewelina
Morka, Aleksandra
Barański, Kamil
Szydłowski, Lesław
author_facet Kolarczyk, Ewelina
Morka, Aleksandra
Barański, Kamil
Szydłowski, Lesław
author_sort Kolarczyk, Ewelina
collection PubMed
description BACKGROUND: Illness in a child with cardiac disease causes stress, brings additional responsibilities, reorganizes family life, and changes the functioning of the family. AIM: This study aimed to validate a new questionnaire evaluating the life situations of caregivers/parents of children with congenital heart disease (CHD) and/or other cardiac diseases (OCD). MATERIALS AND METHODS: The questionnaire comprised 10 questions aimed at assessing the life situation of an ill child’s caregiver in two main areas: personal and spiritual. The total score of the questionnaire assessing the life situation of the caregiver of a child with a CHD and/or OCD can range from 0 to 32 points, with scores <26 indicating a poor, 25 to 32 indicating an average, and >32 indicating a good level of life situation in the personal sphere of the caregiver. The questionnaire was assessed using Cronbach’s alpha tests, and repeatability was assessed using Cohen’s Kappa test (retest) within a time interval of two to 4  weeks from the first measurement. RESULTS: The research covered 50 respondents. Cohesion in the personal sphere obtained a satisfactory value of Cronbach’s α = 0.72, in the spiritual sphere: Cronbach’s α = 0.83, and the result common for both sections was: Cronbach’s α = 0.66. CONCLUSION: The Life Situation Assessment Questionnaire for caregivers of children with CHD and OCD is a reliable and homogeneous tool for measuring the functioning of parents in the event of a child’s illness.
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spelling pubmed-103112382023-07-01 Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire Kolarczyk, Ewelina Morka, Aleksandra Barański, Kamil Szydłowski, Lesław Front Psychol Psychology BACKGROUND: Illness in a child with cardiac disease causes stress, brings additional responsibilities, reorganizes family life, and changes the functioning of the family. AIM: This study aimed to validate a new questionnaire evaluating the life situations of caregivers/parents of children with congenital heart disease (CHD) and/or other cardiac diseases (OCD). MATERIALS AND METHODS: The questionnaire comprised 10 questions aimed at assessing the life situation of an ill child’s caregiver in two main areas: personal and spiritual. The total score of the questionnaire assessing the life situation of the caregiver of a child with a CHD and/or OCD can range from 0 to 32 points, with scores <26 indicating a poor, 25 to 32 indicating an average, and >32 indicating a good level of life situation in the personal sphere of the caregiver. The questionnaire was assessed using Cronbach’s alpha tests, and repeatability was assessed using Cohen’s Kappa test (retest) within a time interval of two to 4  weeks from the first measurement. RESULTS: The research covered 50 respondents. Cohesion in the personal sphere obtained a satisfactory value of Cronbach’s α = 0.72, in the spiritual sphere: Cronbach’s α = 0.83, and the result common for both sections was: Cronbach’s α = 0.66. CONCLUSION: The Life Situation Assessment Questionnaire for caregivers of children with CHD and OCD is a reliable and homogeneous tool for measuring the functioning of parents in the event of a child’s illness. Frontiers Media S.A. 2023-06-15 /pmc/articles/PMC10311238/ /pubmed/37397292 http://dx.doi.org/10.3389/fpsyg.2023.1194031 Text en Copyright © 2023 Kolarczyk, Morka, Barański and Szydłowski. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Psychology
Kolarczyk, Ewelina
Morka, Aleksandra
Barański, Kamil
Szydłowski, Lesław
Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire
title Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire
title_full Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire
title_fullStr Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire
title_full_unstemmed Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire
title_short Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire
title_sort life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire
topic Psychology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10311238/
https://www.ncbi.nlm.nih.gov/pubmed/37397292
http://dx.doi.org/10.3389/fpsyg.2023.1194031
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