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Caregiver burden in Bardet-Biedl syndrome: findings from the CARE-BBS study

BACKGROUND: Bardet-Biedl syndrome (BBS) is a rare, genetically heterogeneous obesity syndrome associated with hyperphagia. Given the early onset of BBS symptoms in childhood and multifaceted complications, this study aimed to quantify the caregiver burden associated with BBS. METHODS: A cross-sectio...

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Detalles Bibliográficos
Autores principales:	Forsythe, Elizabeth, Mallya, Usha G., Yang, Min, Huber, Caroline, Cala, Mary Lynn, Greatsinger, Alexandra, Hagopian, Ella, Pomeroy, Jeremy, Haqq, Andrea M.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10327143/ https://www.ncbi.nlm.nih.gov/pubmed/37415214 http://dx.doi.org/10.1186/s13023-023-02692-8

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