Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research

PURPOSE: The collection and use of patient reported outcomes (PROs) in care-based child health research raises challenging ethical and logistical questions. This paper offers an analysis of two questions related to PROs in child health research: (1) Is it ethically obligatory, desirable or preferabl...

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Detalles Bibliográficos
Autores principales: Vanderhout, Shelley, Potter, Beth K., Smith, Maureen, Butcher, Nancy J., Vaters, Jordan, Chakraborty, Pranesh, Adams, John, Inbar-Feigenberg, Michal, Offringa, Martin, Speechley, Kathy, Trakadis, Yannis, Binik, Ariella
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10329050/
https://www.ncbi.nlm.nih.gov/pubmed/37002464
http://dx.doi.org/10.1007/s11136-023-03393-2

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