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Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test

PURPOSE: This study presents the process of designing workbooks for advance care planning appropriate for the Korean cultural setting and describes actual case studies. METHODS: This study focused on single inductive case studies of the utilization of an advance care planning workbook and recruited...

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Autores principales: Moon, Yi Ji, Lee, Jung, Choo, In Sil, Kang, Sung Han, Kim, Cho Hee, Song, In Gyu, Kim, Min Sun
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Korean Society for Hospice and Palliative Care 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10332726/
https://www.ncbi.nlm.nih.gov/pubmed/37497472
http://dx.doi.org/10.14475/kjhpc.2020.23.4.212
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author Moon, Yi Ji
Lee, Jung
Choo, In Sil
Kang, Sung Han
Kim, Cho Hee
Song, In Gyu
Kim, Min Sun
author_facet Moon, Yi Ji
Lee, Jung
Choo, In Sil
Kang, Sung Han
Kim, Cho Hee
Song, In Gyu
Kim, Min Sun
author_sort Moon, Yi Ji
collection PubMed
description PURPOSE: This study presents the process of designing workbooks for advance care planning appropriate for the Korean cultural setting and describes actual case studies. METHODS: This study focused on single inductive case studies of the utilization of an advance care planning workbook and recruited individual participants. RESULTS: The workbook for adolescents contained six sessions and the workbook for children contained seven sessions. The workbook sessions led to four major discoveries 1) considering the Korean cultural context, discussions on life and death must be held indirectly; 2) the role of the counselor as a supporter is crucial for the workbook to be effective; 3) the workbook must be accessible regardless of the seriousness of the illness; and 4) patients must be able to make their own choice between the workbook versions for children and adolescents. Six facilitating factors improved engagement 1) the role of the counselor as a supporter; 2) building trust with the patient; 3) affirming freedom of expression on topics the patient wished to avoid talking about; 4) having discussions on what private information to keep secret and to whom the information can be disclosed; 5) discovering and regularly discussing relevant topics; and 6) regular communication and information-sharing with the patient’s medical service providers. CONCLUSION: It is necessary to build on actual case studies regarding workbooks for children and adolescents in order to expand the usage of these workbooks to all relevant medical institutions in Korea.
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spelling pubmed-103327262023-07-26 Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test Moon, Yi Ji Lee, Jung Choo, In Sil Kang, Sung Han Kim, Cho Hee Song, In Gyu Kim, Min Sun Hanguk Hosupisu Wanhwa Uiryo Hakhoe Chi Original Article PURPOSE: This study presents the process of designing workbooks for advance care planning appropriate for the Korean cultural setting and describes actual case studies. METHODS: This study focused on single inductive case studies of the utilization of an advance care planning workbook and recruited individual participants. RESULTS: The workbook for adolescents contained six sessions and the workbook for children contained seven sessions. The workbook sessions led to four major discoveries 1) considering the Korean cultural context, discussions on life and death must be held indirectly; 2) the role of the counselor as a supporter is crucial for the workbook to be effective; 3) the workbook must be accessible regardless of the seriousness of the illness; and 4) patients must be able to make their own choice between the workbook versions for children and adolescents. Six facilitating factors improved engagement 1) the role of the counselor as a supporter; 2) building trust with the patient; 3) affirming freedom of expression on topics the patient wished to avoid talking about; 4) having discussions on what private information to keep secret and to whom the information can be disclosed; 5) discovering and regularly discussing relevant topics; and 6) regular communication and information-sharing with the patient’s medical service providers. CONCLUSION: It is necessary to build on actual case studies regarding workbooks for children and adolescents in order to expand the usage of these workbooks to all relevant medical institutions in Korea. Korean Society for Hospice and Palliative Care 2020-12-01 2020-12-01 /pmc/articles/PMC10332726/ /pubmed/37497472 http://dx.doi.org/10.14475/kjhpc.2020.23.4.212 Text en Copyright © 2020 by Korean Society for Hospice and Palliative Care https://creativecommons.org/licenses/by-nc/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0 (https://creativecommons.org/licenses/by-nc/4.0/) ) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Moon, Yi Ji
Lee, Jung
Choo, In Sil
Kang, Sung Han
Kim, Cho Hee
Song, In Gyu
Kim, Min Sun
Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
title Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
title_full Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
title_fullStr Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
title_full_unstemmed Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
title_short Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
title_sort development and application of advance care planning workbooks to facilitate communication with children and adolescent patients: a pilot test
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10332726/
https://www.ncbi.nlm.nih.gov/pubmed/37497472
http://dx.doi.org/10.14475/kjhpc.2020.23.4.212
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