Cargando…

Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review

BACKGROUND: Patient Reported Outcome Measures (PROMs) are being increasingly introduced in clinical registries, providing a personal perspective on the expectations and impact of treatment. The aim of this study was to describe response rates (RR) to PROMs in clinical registries and databases and to...

Descripción completa

Detalles Bibliográficos
Autores principales:	Ruseckaite, Rasa, Mudunna, Chethana, Caruso, Marisa, Ahern, Susannah
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10337187/ https://www.ncbi.nlm.nih.gov/pubmed/37434146 http://dx.doi.org/10.1186/s12955-023-02155-5

Ejemplares similares

Current state of rare disease registries and databases in Australia: a scoping review
por: Ruseckaite, Rasa, et al.
Publicado: (2023)

Informing a national rare disease registry strategy in Australia: a mixed methods study
por: Ruseckaite, Rasa, et al.
Publicado: (2023)

Acceptability of patient reported outcome measures (PROMs) in a cystic fibrosis data registry
por: Ratnayake, Irushi, et al.
Publicado: (2021)

Developing a Preliminary Conceptual Framework for Guidelines on Inclusion of Patient Reported-Outcome Measures (PROMs) in Clinical Quality Registries
por: Ruseckaite, Rasa, et al.
Publicado: (2019)

A systematic review of patient-reported outcome measures (PROMs) in cystic fibrosis
por: Ratnayake, Irushi, et al.
Publicado: (2020)

Patient-Reported Outcome Measures in Cystic Fibrosis: Protocol for a Systematic Review
por: Ratnayake, Irushi, et al.
Publicado: (2020)

Hereditary Endocrine Tumor Registries
por: Moore, Edwina C, et al.
Publicado: (2022)

Patient-reported outcome measures for pain in women with pelvic floor disorders: a systematic review
por: Ralphsmith, Maisie, et al.
Publicado: (2022)

Preliminary development of recommendations for the inclusion of patient-reported outcome measures in clinical quality registries
por: Ruseckaite, Rasa, et al.
Publicado: (2022)

Evaluation and acceptability of patient-reported outcome measures in women following pelvic organ prolapse procedures
por: Ruseckaite, Rasa, et al.
Publicado: (2023)

Development of a percutaneous coronary intervention patient level composite measure for a clinical quality registry
por: Ayton, Darshini, et al.
Publicado: (2020)

Evaluation of the acceptability of patient-reported outcome measures in women following pelvic floor procedures
por: Ruseckaite, Rasa, et al.
Publicado: (2022)

Development of a conceptual framework for a new patient-reported outcome measure for pain in women following mesh surgery for pelvic floor disorders: a qualitative study
por: Ralphsmith, Maisie, et al.
Publicado: (2022)

Lung function over the life course of paediatric and adult patients with cystic fibrosis from a large multi-centre registry
por: Earnest, Arul, et al.
Publicado: (2020)

Study protocol of an equivalence randomized controlled trial to evaluate the effectiveness of three different approaches to collecting Patient Reported Outcome Measures (PROMs) data using the Prostate Cancer Outcomes Registry-Victoria (PCOR-VIC)
por: Hoque, Dewan Md Emdadul, et al.
Publicado: (2017)

The role of Australian clinical quality registries in pregnancy care: A scoping review
por: Campion, Tarun Sai David, et al.
Publicado: (2022)

Impact of clinical registries on quality of patient care and health outcomes: protocol for a systematic review
por: Hoque, Dewan Md Emdadul, et al.
Publicado: (2016)

Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review
por: Hoque, Dewan Md Emdadul, et al.
Publicado: (2017)

Factors influencing the attitudes of young Sri Lankan-Australians towards seeking mental healthcare: a national online survey
por: Mudunna, Chethana, et al.
Publicado: (2022)

Clinical outcomes of adults and children with cystic fibrosis during the COVID-19 pandemic
por: Doumit, Michael, et al.
Publicado: (2023)

Patient Reported Outcome Measures After Breast Augmentation – Using the BREAST-Q IS
por: Jayasinghe, Randi T, et al.
Publicado: (2022)

Establishment and initial implementation of the Australasian Pelvic Floor Procedure Registry
por: Jayasinghe, Randi T., et al.
Publicado: (2023)

Evaluations of statistical methods for outlier detection when benchmarking in clinical registries: a systematic review
por: Hansen, Jessy, et al.
Publicado: (2023)

A retrospective analysis of Victorian and South Australian clinical registries for prostate cancer: trends in clinical presentation and management of the disease
por: Ruseckaite, Rasa, et al.
Publicado: (2016)

The protocol of a clinical quality registry for dementia and mild cognitive impairment (MCI): the Australian dementia network (ADNeT) Registry
por: Lin, Xiaoping, et al.
Publicado: (2020)

Repeat workers' compensation claims: risk factors, costs and work disability
por: Ruseckaite, Rasa, et al.
Publicado: (2011)

The incidence and impact of recurrent workplace injury and disease: a cohort study of WorkSafe Victoria, Australia compensation claims
por: Ruseckaite, Rasa, et al.
Publicado: (2013)

333: Perceptions of telehealth of patients with cystic fibrosis and their caregivers during the COVID-19 pandemic in Australia
por: Ruseckaite, R., et al.
Publicado: (2021)

Survival of people with cystic fibrosis in Australia
por: Ruseckaite, Rasa, et al.
Publicado: (2022)

Academic health science centre models across the developing countries and lessons for implementation in Indonesia: a scoping review
por: Bismantara, Haryo, et al.
Publicado: (2022)

Development of a binational thyroid cancer clinical quality registry: a protocol paper
por: Ioannou, Liane J, et al.
Publicado: (2019)

Beyond standard data collection – the promise and potential of BRAIN (Brain tumour Registry Australia INnovation and translation registry)
por: Gately, Lucy, et al.
Publicado: (2022)

Biopsychosocial factors associated with non-recovery after a minor transport-related injury: A systematic review
por: Samoborec, Stella, et al.
Publicado: (2018)

Dental implant quality registries and databases: A systematic review
por: Naemi, Roya, et al.
Publicado: (2021)

The influence of collecting patient-reported outcome measures on visit satisfaction in rheumatology clinics
por: Honomichl, Ryan, et al.
Publicado: (2020)

Prostate care and prostate cancer from the perspectives of undiagnosed men: a systematic review of qualitative research
por: Kannan, Ashwini, et al.
Publicado: (2019)

Prostate cancer awareness, case-finding, and early diagnosis: Interviews with undiagnosed men in Australia
por: Kannan, Ashwini, et al.
Publicado: (2019)

Biopsychosocial factors associated with non-recovery after a minor transport-related injury: protocol for a systematic review
por: Samoborec, Stella, et al.
Publicado: (2017)

Biopsychosocial barriers affecting recovery after a minor transport‐related injury: A qualitative study from Victoria
por: Samoborec, Stella, et al.
Publicado: (2019)

Database quality assessment in research in paramedicine: a scoping review
por: McDonald, Neil, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_pidpbegm7nk9uatimtkosr57jn