Cargando…

Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease

Detalles Bibliográficos
Autores principales:	Howell, Kristen E., Pugh, Norma, Longoria, Jennifer, Shah, Nirmish, Kutlar, Abdullah, Gordeuk, Victor R., King, Allison A., Glassberg, Jeffrey, Kayle, Mariam, Melvin, Cathy, Treadwell, Marsha, Hankins, Jane S., Porter, Jerlym S.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Lippincott Williams & Wilkins 2023
Materias:	Letter
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10348722/ https://www.ncbi.nlm.nih.gov/pubmed/37456969 http://dx.doi.org/10.1097/HS9.0000000000000930

Ejemplares similares

Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium
por: Masese, Rita V., et al.
Publicado: (2021)

Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study
por: Hankins, Jane S, et al.
Publicado: (2020)

An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model
por: Treadwell, Marsha J., et al.
Publicado: (2022)

Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care
por: Kanter, Julie, et al.
Publicado: (2020)

Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry
por: Glassberg, Jeffrey A., et al.
Publicado: (2020)

Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease
por: Harris, Kelly M., et al.
Publicado: (2023)

Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA
por: Smeltzer, Matthew P, et al.
Publicado: (2021)

Perspectives of individuals with sickle cell disease on barriers to care
por: Phillips, Shannon, et al.
Publicado: (2022)

Evaluating the implementation of a multi-level mHealth study to improve hydroxyurea utilization in sickle cell disease
por: Hankins, J. S, et al.
Publicado: (2023)

Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study
por: Saulsberry, Anjelica C, et al.
Publicado: (2020)

The Effect of an Adapted Digital Mental Health Intervention for Sickle Cell Disease on Engagement: A Pilot Randomized Controlled Trial
por: Parchuri, Ektha, et al.
Publicado: (2023)

Implementation and Preliminary Effectiveness of mHealth Apps for Improving Sickle Cell Disease Care during COVID-19: A Mixed-Methods Evaluation
por: Badawy, Sherif M., et al.
Publicado: (2021)

Intensive hydroxyurea dosing in very young children with sickle cell anemia
por: Wang, Winfred C., et al.
Publicado: (2023)

Pharmacokinetics, pharmacodynamics, safety, and efficacy of crizanlizumab in patients with sickle cell disease
por: Kanter, Julie, et al.
Publicado: (2022)

Time to rethink haemoglobin threshold guidelines in sickle cell disease
por: Ballas, Samir K., et al.
Publicado: (2021)

P-070: PLANNING IMPLEMENATION OF PEDIATRIC-TO-ADULT CARE TRANSITION IN SICKLE CELL DISEASE IN BRAZIL
por: J., HANKINS, et al.
Publicado: (2022)

Electronic Health Record–Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study
por: Luo, Lingzi, et al.
Publicado: (2021)

Risk factors for hospitalizations and readmissions among individuals with sickle cell disease: results of a U.S. survey study
por: Cronin, Robert M., et al.
Publicado: (2019)

What does it mean to be affiliated with care?: Delphi consensus on the definition of “unaffiliation” and “specialist” in sickle cell disease
por: Lamont, Andrea E., et al.
Publicado: (2022)

Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach
por: Alberts, Nicole M, et al.
Publicado: (2020)

“The project did not come to us with a solution”: Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell disease
por: Baumann, Ana A., et al.
Publicado: (2023)

P-Selectin Blockade in the Treatment of Painful Vaso-Occlusive Crises in Sickle Cell Disease: A Spotlight on Crizanlizumab
por: Karki, Nabin Raj, et al.
Publicado: (2021)

The missing middle of sickle therapeutics: Multi‐agent therapy, targeting risk, using biomarkers
por: Hebbel, Robert P., et al.
Publicado: (2018)

Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠
por: Keller, San, et al.
Publicado: (2017)

Barriers to Pediatric Sickle Cell Disease Guideline Recommendations
por: Cabana, Michael D., et al.
Publicado: (2019)

COVID-19 Vaccination Status and Disease Burden in Patients with Sickle Cell Disease
por: Han, Jin, et al.
Publicado: (2022)

Patient-Centered eHealth Interventions for Children, Adolescents, and Adults With Sickle Cell Disease: Systematic Review
por: Badawy, Sherif M, et al.
Publicado: (2018)

Characteristics of sickle cell patients with frequent emergency department visits and hospitalizations
por: Kidwell, Kyle, et al.
Publicado: (2021)

Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings
por: Strunk, Crawford, et al.
Publicado: (2020)

Development of a Severity Classification System for Sickle Cell Disease
por: Shah, Nirmish, et al.
Publicado: (2020)

Treatment patterns and economic burden of sickle-cell disease patients prescribed hydroxyurea: a retrospective claims-based study
por: Shah, Nirmish, et al.
Publicado: (2019)

Genetic risk factors for cerebrovascular disease in children with sickle cell disease: design of a case-control association study and genomewide screen
por: Adams, Gaye T, et al.
Publicado: (2003)

Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks
por: Keller, San D, et al.
Publicado: (2014)

Is sickle cell disease the same everywhere?
por: Hankins, Jane
Publicado: (2012)

Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients
por: Wonkam, Ambroise, et al.
Publicado: (2015)

CureSCi Metadata Catalog–Making sickle cell studies findable
por: Pan, Huaqin, et al.
Publicado: (2022)

Clinical predictors of poor outcomes in patients with sickle cell disease and COVID-19 infection
por: Minniti, Caterina P., et al.
Publicado: (2021)

Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC)
por: Masese, Rita V., et al.
Publicado: (2020)

Sickle cell disease complications: Prevalence and resource utilization
por: Shah, Nirmish, et al.
Publicado: (2019)

Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care
por: Evensen, Christian T., et al.
Publicado: (2016)

Cannot write session to /tmp/vufind_sessions/sess_tdhn9pahpa3s34iipjrq2cdjpf