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Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
INTRODUCTION: Although prior research has provided an understanding of the needs of people living with dementia (PLWD) and their carers, less is known about how tailored multicomponent interventions impact their lives. This study explored the effect of providing ongoing support to people who had bee...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349222/ https://www.ncbi.nlm.nih.gov/pubmed/37086030 http://dx.doi.org/10.1111/hex.13767 |
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author | Ling, Jonathan McCabe, Karen Crosland, Ann Kane, Laura Eberhardt, Judith |
author_facet | Ling, Jonathan McCabe, Karen Crosland, Ann Kane, Laura Eberhardt, Judith |
author_sort | Ling, Jonathan |
collection | PubMed |
description | INTRODUCTION: Although prior research has provided an understanding of the needs of people living with dementia (PLWD) and their carers, less is known about how tailored multicomponent interventions impact their lives. This study explored the effect of providing ongoing support to people who had been recently diagnosed with dementia and to their carers. METHODS: We conducted interviews with a convenience sample of key stakeholders: 11 interviews with people who had dementia and their familial carers (n = 14) and six interviews with staff and other practitioners involved with the service (n = 13). Inductive thematic analysis was performed on the data. RESULTS: Four themes were developed: the service as a source of respite, peer support, activities as facilitators of emotional wellbeing, and social support. The service was well‐respected, credible, and trusted and was highly valued by practitioners, clients, and carers. It had a clear role in supporting PLWD and their carers. Peer support provided through the service contributed to greatly reducing self‐reported carer burden. CONCLUSION: Recommendations arising from this study include offering holistic services to PLWD and their carers, developing activities for men, raising awareness of services among practitioners working with PLWD, and improving partnerships between services and agencies working with older people. PATIENT OR PUBLIC CONTRIBUTION: Service users were consulted on the themes generated from the data and were asked to provide feedback to help guide the interpretation of the data and ensure this reflected their views and experiences. |
format | Online Article Text |
id | pubmed-10349222 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-103492222023-07-16 Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study Ling, Jonathan McCabe, Karen Crosland, Ann Kane, Laura Eberhardt, Judith Health Expect Original Articles INTRODUCTION: Although prior research has provided an understanding of the needs of people living with dementia (PLWD) and their carers, less is known about how tailored multicomponent interventions impact their lives. This study explored the effect of providing ongoing support to people who had been recently diagnosed with dementia and to their carers. METHODS: We conducted interviews with a convenience sample of key stakeholders: 11 interviews with people who had dementia and their familial carers (n = 14) and six interviews with staff and other practitioners involved with the service (n = 13). Inductive thematic analysis was performed on the data. RESULTS: Four themes were developed: the service as a source of respite, peer support, activities as facilitators of emotional wellbeing, and social support. The service was well‐respected, credible, and trusted and was highly valued by practitioners, clients, and carers. It had a clear role in supporting PLWD and their carers. Peer support provided through the service contributed to greatly reducing self‐reported carer burden. CONCLUSION: Recommendations arising from this study include offering holistic services to PLWD and their carers, developing activities for men, raising awareness of services among practitioners working with PLWD, and improving partnerships between services and agencies working with older people. PATIENT OR PUBLIC CONTRIBUTION: Service users were consulted on the themes generated from the data and were asked to provide feedback to help guide the interpretation of the data and ensure this reflected their views and experiences. John Wiley and Sons Inc. 2023-04-21 /pmc/articles/PMC10349222/ /pubmed/37086030 http://dx.doi.org/10.1111/hex.13767 Text en © 2023 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Articles Ling, Jonathan McCabe, Karen Crosland, Ann Kane, Laura Eberhardt, Judith Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study |
title | Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study |
title_full | Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study |
title_fullStr | Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study |
title_full_unstemmed | Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study |
title_short | Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study |
title_sort | evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: a qualitative study |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349222/ https://www.ncbi.nlm.nih.gov/pubmed/37086030 http://dx.doi.org/10.1111/hex.13767 |
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