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Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study

INTRODUCTION: Although prior research has provided an understanding of the needs of people living with dementia (PLWD) and their carers, less is known about how tailored multicomponent interventions impact their lives. This study explored the effect of providing ongoing support to people who had bee...

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Autores principales: Ling, Jonathan, McCabe, Karen, Crosland, Ann, Kane, Laura, Eberhardt, Judith
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349222/
https://www.ncbi.nlm.nih.gov/pubmed/37086030
http://dx.doi.org/10.1111/hex.13767
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author Ling, Jonathan
McCabe, Karen
Crosland, Ann
Kane, Laura
Eberhardt, Judith
author_facet Ling, Jonathan
McCabe, Karen
Crosland, Ann
Kane, Laura
Eberhardt, Judith
author_sort Ling, Jonathan
collection PubMed
description INTRODUCTION: Although prior research has provided an understanding of the needs of people living with dementia (PLWD) and their carers, less is known about how tailored multicomponent interventions impact their lives. This study explored the effect of providing ongoing support to people who had been recently diagnosed with dementia and to their carers. METHODS: We conducted interviews with a convenience sample of key stakeholders: 11 interviews with people who had dementia and their familial carers (n = 14) and six interviews with staff and other practitioners involved with the service (n = 13). Inductive thematic analysis was performed on the data. RESULTS: Four themes were developed: the service as a source of respite, peer support, activities as facilitators of emotional wellbeing, and social support. The service was well‐respected, credible, and trusted and was highly valued by practitioners, clients, and carers. It had a clear role in supporting PLWD and their carers. Peer support provided through the service contributed to greatly reducing self‐reported carer burden. CONCLUSION: Recommendations arising from this study include offering holistic services to PLWD and their carers, developing activities for men, raising awareness of services among practitioners working with PLWD, and improving partnerships between services and agencies working with older people. PATIENT OR PUBLIC CONTRIBUTION: Service users were consulted on the themes generated from the data and were asked to provide feedback to help guide the interpretation of the data and ensure this reflected their views and experiences.
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spelling pubmed-103492222023-07-16 Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study Ling, Jonathan McCabe, Karen Crosland, Ann Kane, Laura Eberhardt, Judith Health Expect Original Articles INTRODUCTION: Although prior research has provided an understanding of the needs of people living with dementia (PLWD) and their carers, less is known about how tailored multicomponent interventions impact their lives. This study explored the effect of providing ongoing support to people who had been recently diagnosed with dementia and to their carers. METHODS: We conducted interviews with a convenience sample of key stakeholders: 11 interviews with people who had dementia and their familial carers (n = 14) and six interviews with staff and other practitioners involved with the service (n = 13). Inductive thematic analysis was performed on the data. RESULTS: Four themes were developed: the service as a source of respite, peer support, activities as facilitators of emotional wellbeing, and social support. The service was well‐respected, credible, and trusted and was highly valued by practitioners, clients, and carers. It had a clear role in supporting PLWD and their carers. Peer support provided through the service contributed to greatly reducing self‐reported carer burden. CONCLUSION: Recommendations arising from this study include offering holistic services to PLWD and their carers, developing activities for men, raising awareness of services among practitioners working with PLWD, and improving partnerships between services and agencies working with older people. PATIENT OR PUBLIC CONTRIBUTION: Service users were consulted on the themes generated from the data and were asked to provide feedback to help guide the interpretation of the data and ensure this reflected their views and experiences. John Wiley and Sons Inc. 2023-04-21 /pmc/articles/PMC10349222/ /pubmed/37086030 http://dx.doi.org/10.1111/hex.13767 Text en © 2023 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Ling, Jonathan
McCabe, Karen
Crosland, Ann
Kane, Laura
Eberhardt, Judith
Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
title Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
title_full Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
title_fullStr Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
title_full_unstemmed Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
title_short Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
title_sort evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: a qualitative study
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349222/
https://www.ncbi.nlm.nih.gov/pubmed/37086030
http://dx.doi.org/10.1111/hex.13767
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