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Using social media listening to understand barriers to genomic medicine for those living with Ehlers–Danlos syndromes and hypermobility spectrum disorders

INTRODUCTION: Technological improvements alone have not led to the integration of genomic medicine across a broad range of diseases and populations. For genomic medicine to be successfully implemented across specialties and conditions, the challenges patients and caregivers experience need to be ide...

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Detalles Bibliográficos
Autores principales:	Kline, Erika, Garrett, Amanda Leigh, Brownstein, Catherine, Ziniel, Sonja, Payton, Erica, Goldin, Aleah, Hoffman, Kathleen, Chandler, Judy, Weber, Shani
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2023
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349242/ https://www.ncbi.nlm.nih.gov/pubmed/37062887 http://dx.doi.org/10.1111/hex.13755

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