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Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research

OBJECTIVE: Inclusion of underrepresented racial and ethnic groups in eating disorder (ED) research is a critical unmet need, but evidence-based recruitment strategies are lacking. We sought to determine whether methods we had implemented to increase recruitment of underrepresented racial and ethnic...

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Autores principales: Strauch, Julianne, Agnew, Alexandra, Meenaghan, Erinne, Miller, Karen K., Haines, Melanie S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349455/
https://www.ncbi.nlm.nih.gov/pubmed/37454157
http://dx.doi.org/10.1186/s40337-023-00844-6
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author Strauch, Julianne
Agnew, Alexandra
Meenaghan, Erinne
Miller, Karen K.
Haines, Melanie S.
author_facet Strauch, Julianne
Agnew, Alexandra
Meenaghan, Erinne
Miller, Karen K.
Haines, Melanie S.
author_sort Strauch, Julianne
collection PubMed
description OBJECTIVE: Inclusion of underrepresented racial and ethnic groups in eating disorder (ED) research is a critical unmet need, but evidence-based recruitment strategies are lacking. We sought to determine whether methods we had implemented to increase recruitment of underrepresented racial and ethnic groups were successful in improving racial and ethnic diversity in a clinical trial in women with anorexia nervosa. METHOD: We implemented new strategies for recruitment of underrepresented racial and ethnic groups in a clinical trial on bone health in women with anorexia nervosa, including leveraging social media, liberalizing language on advertisements to be more inclusive of women who are as yet undiagnosed with the disorder or feel stigmatized by its name, translating advertisements to Spanish, and engaging community health centers. We compared participants’ race and ethnicity in this clinical trial versus two similar prior clinical trials. RESULTS: The percent of non-White and Hispanic participants who have signed a consent form in our ongoing clinical trial (2021–2023) is higher versus two previous clinical trials on bone health in women with anorexia nervosa (2011–2019) with similar inclusion/exclusion criteria and endpoints [non-White: 11/38 (28.9%) vs. 11/188 (5.9%), Hispanic: 6/38 (15.8%) vs. 5/188 (2.7%), p ≤ 0.006]. There was no change in the percent of Black participants [0/38 (0%) vs. 1/188 (0.5%), p = 1.0]. DISCUSSION: Viewing clinical research recruitment through a diversity, equity, and inclusion lens can improve racial and ethnic diversity in ED research. Further research recruitment strategies are needed to be more inclusive of Black populations.
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spelling pubmed-103494552023-07-16 Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research Strauch, Julianne Agnew, Alexandra Meenaghan, Erinne Miller, Karen K. Haines, Melanie S. J Eat Disord Correspondence OBJECTIVE: Inclusion of underrepresented racial and ethnic groups in eating disorder (ED) research is a critical unmet need, but evidence-based recruitment strategies are lacking. We sought to determine whether methods we had implemented to increase recruitment of underrepresented racial and ethnic groups were successful in improving racial and ethnic diversity in a clinical trial in women with anorexia nervosa. METHOD: We implemented new strategies for recruitment of underrepresented racial and ethnic groups in a clinical trial on bone health in women with anorexia nervosa, including leveraging social media, liberalizing language on advertisements to be more inclusive of women who are as yet undiagnosed with the disorder or feel stigmatized by its name, translating advertisements to Spanish, and engaging community health centers. We compared participants’ race and ethnicity in this clinical trial versus two similar prior clinical trials. RESULTS: The percent of non-White and Hispanic participants who have signed a consent form in our ongoing clinical trial (2021–2023) is higher versus two previous clinical trials on bone health in women with anorexia nervosa (2011–2019) with similar inclusion/exclusion criteria and endpoints [non-White: 11/38 (28.9%) vs. 11/188 (5.9%), Hispanic: 6/38 (15.8%) vs. 5/188 (2.7%), p ≤ 0.006]. There was no change in the percent of Black participants [0/38 (0%) vs. 1/188 (0.5%), p = 1.0]. DISCUSSION: Viewing clinical research recruitment through a diversity, equity, and inclusion lens can improve racial and ethnic diversity in ED research. Further research recruitment strategies are needed to be more inclusive of Black populations. BioMed Central 2023-07-15 /pmc/articles/PMC10349455/ /pubmed/37454157 http://dx.doi.org/10.1186/s40337-023-00844-6 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Correspondence
Strauch, Julianne
Agnew, Alexandra
Meenaghan, Erinne
Miller, Karen K.
Haines, Melanie S.
Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research
title Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research
title_full Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research
title_fullStr Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research
title_full_unstemmed Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research
title_short Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research
title_sort recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research
topic Correspondence
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349455/
https://www.ncbi.nlm.nih.gov/pubmed/37454157
http://dx.doi.org/10.1186/s40337-023-00844-6
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