A refresh of the top 10 research priorities in cystic fibrosis

In 2018 we published the James Lind Alliance (JLA) top 10 priorities for clinical research in cystic fibrosis (CF), chosen jointly by the patient and clinical communities. These priorities have led to new research funding. To establish whether priorities have changed with novel modulator therapies,...

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Autores principales: Rowbotham, Nicola Jane, Smith, Sherie, Elliott, Zoe C, Cupid, Belinda, Allen, Lorna J, Cowan, Katherine, Allen, Lucy, Smyth, Alan Robert
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Short Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10359564/
https://www.ncbi.nlm.nih.gov/pubmed/37286236
http://dx.doi.org/10.1136/thorax-2023-220100
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author Rowbotham, Nicola Jane
Smith, Sherie
Elliott, Zoe C
Cupid, Belinda
Allen, Lorna J
Cowan, Katherine
Allen, Lucy
Smyth, Alan Robert
author_facet Rowbotham, Nicola Jane
Smith, Sherie
Elliott, Zoe C
Cupid, Belinda
Allen, Lorna J
Cowan, Katherine
Allen, Lucy
Smyth, Alan Robert
author_sort Rowbotham, Nicola Jane
collection PubMed
description In 2018 we published the James Lind Alliance (JLA) top 10 priorities for clinical research in cystic fibrosis (CF), chosen jointly by the patient and clinical communities. These priorities have led to new research funding. To establish whether priorities have changed with novel modulator therapies, we undertook an online international update through a series of surveys and a workshop. Patients and clinicians (n=1417) chose the refreshed top 10 from 971 new research questions (suggested by patients and clinicians) and 15 questions from 2018. We are working with the international community to promote research based on these refreshed top 10 priorities.
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spelling pubmed-103595642023-07-22 A refresh of the top 10 research priorities in cystic fibrosis Rowbotham, Nicola Jane Smith, Sherie Elliott, Zoe C Cupid, Belinda Allen, Lorna J Cowan, Katherine Allen, Lucy Smyth, Alan Robert Thorax Short Report In 2018 we published the James Lind Alliance (JLA) top 10 priorities for clinical research in cystic fibrosis (CF), chosen jointly by the patient and clinical communities. These priorities have led to new research funding. To establish whether priorities have changed with novel modulator therapies, we undertook an online international update through a series of surveys and a workshop. Patients and clinicians (n=1417) chose the refreshed top 10 from 971 new research questions (suggested by patients and clinicians) and 15 questions from 2018. We are working with the international community to promote research based on these refreshed top 10 priorities. BMJ Publishing Group 2023-08 2023-06-07 /pmc/articles/PMC10359564/ /pubmed/37286236 http://dx.doi.org/10.1136/thorax-2023-220100 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Short Report
Rowbotham, Nicola Jane
Smith, Sherie
Elliott, Zoe C
Cupid, Belinda
Allen, Lorna J
Cowan, Katherine
Allen, Lucy
Smyth, Alan Robert
A refresh of the top 10 research priorities in cystic fibrosis
title A refresh of the top 10 research priorities in cystic fibrosis
title_full A refresh of the top 10 research priorities in cystic fibrosis
title_fullStr A refresh of the top 10 research priorities in cystic fibrosis
title_full_unstemmed A refresh of the top 10 research priorities in cystic fibrosis
title_short A refresh of the top 10 research priorities in cystic fibrosis
title_sort refresh of the top 10 research priorities in cystic fibrosis
topic Short Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10359564/
https://www.ncbi.nlm.nih.gov/pubmed/37286236
http://dx.doi.org/10.1136/thorax-2023-220100
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