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Professional activity, gender and disease-related emotions: The impact on parents' experiences in caring for children with phenylketonuria

INTRODUCTION: Clinical management of rare diseases often fails to acknowledge the challenges faced by caregivers. Whilst management of phenylketonuria (PKU) may not be considered as dire as other conditions, most studies primarily concentrate on clinical issues, dietary adherence, or the quality of...

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Detalles Bibliográficos
Autores principales:	Walkowiak, Dariusz, Domaradzki, Jan, Mozrzymas, Renata, Korycińska-Chaaban, Dorota, Duś-Żuchowska, Monika, Didycz, Bożena, Mikołuć, Bożena, Walkowiak, Jarosław
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Elsevier 2023
Materias:	Research Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10368909/ https://www.ncbi.nlm.nih.gov/pubmed/37502286 http://dx.doi.org/10.1016/j.ymgmr.2023.100992

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