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Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease

Individuals with sickle cell disease are increasingly surviving into adulthood, many of whom have interest in future biological parenthood. Reproductive health knowledge is low among adolescent and young adult males and their caregivers. Their understanding of these topics is needed to optimize thei...

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Autores principales: Colton, Zachary A., Stanek, Charis J., Liles, Sophia M., Baker, Christian, Barnard-Kirk, Toyetta, Chan, Peter, McCorkle, Ben, Quinn, Gwendolyn P., Shen, Yvette, Theroux, Charleen I., Creary, Susan E., Nahata, Leena
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10370742/
https://www.ncbi.nlm.nih.gov/pubmed/37494379
http://dx.doi.org/10.1371/journal.pone.0289039
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author Colton, Zachary A.
Stanek, Charis J.
Liles, Sophia M.
Baker, Christian
Barnard-Kirk, Toyetta
Chan, Peter
McCorkle, Ben
Quinn, Gwendolyn P.
Shen, Yvette
Theroux, Charleen I.
Creary, Susan E.
Nahata, Leena
author_facet Colton, Zachary A.
Stanek, Charis J.
Liles, Sophia M.
Baker, Christian
Barnard-Kirk, Toyetta
Chan, Peter
McCorkle, Ben
Quinn, Gwendolyn P.
Shen, Yvette
Theroux, Charleen I.
Creary, Susan E.
Nahata, Leena
author_sort Colton, Zachary A.
collection PubMed
description Individuals with sickle cell disease are increasingly surviving into adulthood, many of whom have interest in future biological parenthood. Reproductive health knowledge is low among adolescent and young adult males and their caregivers. Their understanding of these topics is needed to optimize their reproductive health outcomes. As such, through collaboration with a community advisory board (adolescents and young adults with sickle cell disease and mothers of adolescent and young adult males with sickle cell disease) and digital design team, we developed a web-based sickle cell disease-focused reproductive health program entitled FUTURES to address these knowledge gaps. For phase I of this two phase feasibility and acceptability study, adolescent and young adult males and their caregivers will complete a pre- and post-program reproductive health knowledge and attitudes questionnaire to assess change in knowledge. In phase II, after learning about fertility testing as part of the FUTURES curriculum, adolescent and young adult male participants are given the option to pursue testing. The two-phase study aims to: 1) develop and test the feasibility, acceptability, and efficacy of a reproductive health web-based educational program at increasing reproductive health knowledge in male adolescent and young adult males with sickle cell disease and their caregivers, and 2) assess feasibility of fertility testing. The long-term goal is to improve reproductive and psychosocial outcomes among adolescent and young adult males with sickle cell disease.
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spelling pubmed-103707422023-07-27 Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease Colton, Zachary A. Stanek, Charis J. Liles, Sophia M. Baker, Christian Barnard-Kirk, Toyetta Chan, Peter McCorkle, Ben Quinn, Gwendolyn P. Shen, Yvette Theroux, Charleen I. Creary, Susan E. Nahata, Leena PLoS One Study Protocol Individuals with sickle cell disease are increasingly surviving into adulthood, many of whom have interest in future biological parenthood. Reproductive health knowledge is low among adolescent and young adult males and their caregivers. Their understanding of these topics is needed to optimize their reproductive health outcomes. As such, through collaboration with a community advisory board (adolescents and young adults with sickle cell disease and mothers of adolescent and young adult males with sickle cell disease) and digital design team, we developed a web-based sickle cell disease-focused reproductive health program entitled FUTURES to address these knowledge gaps. For phase I of this two phase feasibility and acceptability study, adolescent and young adult males and their caregivers will complete a pre- and post-program reproductive health knowledge and attitudes questionnaire to assess change in knowledge. In phase II, after learning about fertility testing as part of the FUTURES curriculum, adolescent and young adult male participants are given the option to pursue testing. The two-phase study aims to: 1) develop and test the feasibility, acceptability, and efficacy of a reproductive health web-based educational program at increasing reproductive health knowledge in male adolescent and young adult males with sickle cell disease and their caregivers, and 2) assess feasibility of fertility testing. The long-term goal is to improve reproductive and psychosocial outcomes among adolescent and young adult males with sickle cell disease. Public Library of Science 2023-07-26 /pmc/articles/PMC10370742/ /pubmed/37494379 http://dx.doi.org/10.1371/journal.pone.0289039 Text en © 2023 Colton et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Study Protocol
Colton, Zachary A.
Stanek, Charis J.
Liles, Sophia M.
Baker, Christian
Barnard-Kirk, Toyetta
Chan, Peter
McCorkle, Ben
Quinn, Gwendolyn P.
Shen, Yvette
Theroux, Charleen I.
Creary, Susan E.
Nahata, Leena
Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease
title Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease
title_full Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease
title_fullStr Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease
title_full_unstemmed Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease
title_short Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease
title_sort study protocol for futures: testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10370742/
https://www.ncbi.nlm.nih.gov/pubmed/37494379
http://dx.doi.org/10.1371/journal.pone.0289039
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