Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies

INTRODUCTION: Linking healthcare data sets can create valuable resources for research, particularly when investigating rare exposures or outcomes. However, across Europe, the permissions processes required to access data can be complex. This paper documents the processes required by the EUROlinkCAT...

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Detalles Bibliográficos
Autores principales: Claridge, Hugh, Tan, Joachim, Loane, Maria, Garne, Ester, Barisic, Ingeborg, Cavero-Carbonell, Clara, Dias, Carlos, Gatt, Miriam, Jordan, Susan, Khoshnood, Babak, Kiuru-Kuhlefelt, Sonja, Klungsoyr, Kari, Mokoroa Carollo, Olatz, Nelen, Vera, Neville, Amanda J, Pierini, Anna, Randrianaivo, Hanitra, Rissmann, Anke, Tucker, David, de Walle, Hermien, Wertelecki, Wladimir, Morris, Joan K
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Ethics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10387628/
https://www.ncbi.nlm.nih.gov/pubmed/37500278
http://dx.doi.org/10.1136/bmjopen-2023-071687

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