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The IRDiRC Chrysalis Task Force: making rare disease research attractive to companies
BACKGROUND: The International Rare Diseases Research Consortium (IRDiRC) is an international initiative that aims to use research to facilitate rapid diagnosis and treatment of rare diseases. OBJECTIVE: IRDiRC launched the Chrysalis Task Force to identify key financial and nonfinancial factors that...
Autores principales: | Beaverson, Katherine L., Julkowska, Daria, Letinturier, Mary Catherine V., Aartsma-Rus, Annemieke, Austin, Jennifer, Bueren, Juan, Frost, Simon, Hamamura, Misako, Larkindale, Jane, LaRosa, Greg, Magenheim, Rita, Merico, Annamaria, Gerdina Pasmooij, Anna Maria, Pirard, Vinciane, Ekow Thomford, Nicholas, Wada, Michihiko, Wong-Rieger, Durhane, Hartman, Adam L. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10387802/ https://www.ncbi.nlm.nih.gov/pubmed/37529076 http://dx.doi.org/10.1177/26330040231188979 |
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