Data sharing in neurodegenerative disease research: challenges and learnings from the innovative medicines initiative public-private partnership model

Efficient data sharing is hampered by an array of organizational, ethical, behavioral, and technical challenges, slowing research progress and reducing the utility of data generated by clinical research studies on neurodegenerative diseases. There is a particular need to address differences between...

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Detalles Bibliográficos
Autores principales: Bradshaw, Angela, Hughes, Nigel, Vallez-Garcia, David, Chokoshvili, Davit, Owens, Andrew, Hansen, Clint, Emmert, Kirsten, Maetzler, Walter, Killin, Lewis, Barnes, Rodrigo, Brookes, Anthony J., Visser, Pieter Jelle, Hofmann-Apitius, Martin, Diaz, Carlos, Steukers, Lennert
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Neurology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10397390/
https://www.ncbi.nlm.nih.gov/pubmed/37545729
http://dx.doi.org/10.3389/fneur.2023.1187095

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