What matters to parents? A scoping review of parents’ service experiences and needs regarding genetic testing for rare diseases

Patient care experiences are key to promoting better outcomes and are an essential consideration for successful implementation of genomics in paediatric care. To understand parents’ service experiences and needs regarding testing of their child for rare diseases, we conducted a scoping review. Five...

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Detalles Bibliográficos
Autores principales: Crellin, Erin, Martyn, Melissa, McClaren, Belinda, Gaff, Clara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Review Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10400618/
https://www.ncbi.nlm.nih.gov/pubmed/37308600
http://dx.doi.org/10.1038/s41431-023-01376-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10400618/
https://www.ncbi.nlm.nih.gov/pubmed/37308600
http://dx.doi.org/10.1038/s41431-023-01376-y

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