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What matters to parents? A scoping review of parents’ service experiences and needs regarding genetic testing for rare diseases
Patient care experiences are key to promoting better outcomes and are an essential consideration for successful implementation of genomics in paediatric care. To understand parents’ service experiences and needs regarding testing of their child for rare diseases, we conducted a scoping review. Five...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Springer International Publishing
2023
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10400618/ https://www.ncbi.nlm.nih.gov/pubmed/37308600 http://dx.doi.org/10.1038/s41431-023-01376-y |