The utilisation of primary health care system concepts positively impacts the assistance of patients with rare diseases despite limited knowledge and experience by health care professionals: A qualitative synopsis of the evidence including approximately 78 000 individuals

BACKGROUND: Individuals with rare diseases (RD) have been historically understudied. Previous publications reported that existing primary health care (PHC) workforces and associated infrastructure had been shown to improve their access and health-related outcomes in low- and middle-income countries...

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Detalles Bibliográficos
Autores principales: Ferreira, Raquel Lemos, do Nascimento, Israel Júnior Borges, de Almeida, Victor Izidro Alves, de Oliveira, Vanuza Regina Lommez, Marangne, Larissa Gomes, dos Santos Gameleira, Flávia, Dutra, Tárcia Regina Coura, de Oliveira Santos, Daniela, Dias Afonso, Marcelo Pellizzaro, dos Santos, Paula Eduarda Alves, de Oliveira, Helian Nunes, Vilhena Dias, Fernando Machado
Formato: Online Artículo Texto
Lenguaje:English
Publicado: International Society of Global Health 2023
Materias:
Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10401310/
https://www.ncbi.nlm.nih.gov/pubmed/37539555
http://dx.doi.org/10.7189/jogh.13.04030

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