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Development and validation of a novel personalized electronic patient-reported outcome measure to assess quality of life (Q-LIFE): a prospective observational study in people with Cystic Fibrosis

BACKGROUND: Generic and disease-specific patient-reported outcome measures (PROMs) may lack relevance and sensitivity on a patient-level in chronic diseases with differential disease expression and high individual variability, such as Cystic Fibrosis (CF). This study aimed to develop and validate a...

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Detalles Bibliográficos
Autores principales:	Muilwijk, Danya, van Paridon, Tessa J., van der Heijden, Doris C., Faber-Bisschop, Brenda M., Zomer-van Ommen, Domenique D., Heijerman, Harry G.M., van der Ent, Cornelis K.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Elsevier 2023
Materias:	Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10404867/ https://www.ncbi.nlm.nih.gov/pubmed/37554124 http://dx.doi.org/10.1016/j.eclinm.2023.102116

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