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Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia

In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of...

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Autores principales: Alegre-Agís, Elisa, García-Santesmases, Andrea, Pié-Balaguer, Asun, Martínez-Hernáez, Àngel, Bekele, Deborah, Morales-Sáez, Nicolás, Serrano-Miguel, Mercedes
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10406675/
https://www.ncbi.nlm.nih.gov/pubmed/35780258
http://dx.doi.org/10.1007/s11013-022-09788-z
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author Alegre-Agís, Elisa
García-Santesmases, Andrea
Pié-Balaguer, Asun
Martínez-Hernáez, Àngel
Bekele, Deborah
Morales-Sáez, Nicolás
Serrano-Miguel, Mercedes
author_facet Alegre-Agís, Elisa
García-Santesmases, Andrea
Pié-Balaguer, Asun
Martínez-Hernáez, Àngel
Bekele, Deborah
Morales-Sáez, Nicolás
Serrano-Miguel, Mercedes
author_sort Alegre-Agís, Elisa
collection PubMed
description In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers’ experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of “nested dependencies”, which create social isolation. This produces the conditions of “reactionary care”, practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s11013-022-09788-z.
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spelling pubmed-104066752023-08-09 Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia Alegre-Agís, Elisa García-Santesmases, Andrea Pié-Balaguer, Asun Martínez-Hernáez, Àngel Bekele, Deborah Morales-Sáez, Nicolás Serrano-Miguel, Mercedes Cult Med Psychiatry Original Article In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers’ experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of “nested dependencies”, which create social isolation. This produces the conditions of “reactionary care”, practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s11013-022-09788-z. Springer US 2022-07-02 2023 /pmc/articles/PMC10406675/ /pubmed/35780258 http://dx.doi.org/10.1007/s11013-022-09788-z Text en © The Author(s) 2022, corrected publication 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Article
Alegre-Agís, Elisa
García-Santesmases, Andrea
Pié-Balaguer, Asun
Martínez-Hernáez, Àngel
Bekele, Deborah
Morales-Sáez, Nicolás
Serrano-Miguel, Mercedes
Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
title Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
title_full Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
title_fullStr Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
title_full_unstemmed Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
title_short Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
title_sort unraveling reactionary care: the experience of mother-caregivers of adults with severe mental disorders in catalonia
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10406675/
https://www.ncbi.nlm.nih.gov/pubmed/35780258
http://dx.doi.org/10.1007/s11013-022-09788-z
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