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A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community

The increased use of telehealth in cancer care during the coronavirus disease 2019 pandemic has added to our knowledge and experience of the modality with benefits in terms of efficacy, cost, and patient and healthcare professional experience reported. However, telehealth has also been found not to...

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Autores principales: Addario, Bonnie, Astratinei, Violeta, Binder, Louise, Geissler, Jan, Horn, Marcia K., Krebs, Linda U., Lewis, Bryan, Oliver, Kathy, Spiegel, Andrew
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10409807/
https://www.ncbi.nlm.nih.gov/pubmed/37493895
http://dx.doi.org/10.1007/s40271-023-00642-x
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author Addario, Bonnie
Astratinei, Violeta
Binder, Louise
Geissler, Jan
Horn, Marcia K.
Krebs, Linda U.
Lewis, Bryan
Oliver, Kathy
Spiegel, Andrew
author_facet Addario, Bonnie
Astratinei, Violeta
Binder, Louise
Geissler, Jan
Horn, Marcia K.
Krebs, Linda U.
Lewis, Bryan
Oliver, Kathy
Spiegel, Andrew
author_sort Addario, Bonnie
collection PubMed
description The increased use of telehealth in cancer care during the coronavirus disease 2019 pandemic has added to our knowledge and experience of the modality with benefits in terms of efficacy, cost, and patient and healthcare professional experience reported. However, telehealth has also been found not to be universally available to all patients with cancer, nor to be appropriate for every healthcare interaction; additionally, not all patients prefer it. Now that coronavirus disease restrictions have essentially ended and an opportunity to re-assess telehealth provision in cancer care presents, we offer a framework that aims to ensure that the needs and preferences of the patient community are included in the development of telehealth provision. Stakeholders in this process include patients, patient advocates, healthcare providers, healthcare services commissioners, managers, and policy makers. The framework outlines how patient advocates can work with other stakeholders as equal partners at all stages of telehealth service development. The patient advocate community has a unique understanding of the patient perspective as well as expertise in healthcare design and delivery. This enables advocates to contribute to shaping telehealth provision, from policy and guideline formulation to patient navigation. Appropriate resources, education and training may be needed for all stakeholders to support the development of an effective telehealth system. Together with other stakeholders, patient advocates can make an important contribution to optimizing appropriate patient-centred telehealth provision in cancer care.
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spelling pubmed-104098072023-08-10 A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community Addario, Bonnie Astratinei, Violeta Binder, Louise Geissler, Jan Horn, Marcia K. Krebs, Linda U. Lewis, Bryan Oliver, Kathy Spiegel, Andrew Patient Current Opinion The increased use of telehealth in cancer care during the coronavirus disease 2019 pandemic has added to our knowledge and experience of the modality with benefits in terms of efficacy, cost, and patient and healthcare professional experience reported. However, telehealth has also been found not to be universally available to all patients with cancer, nor to be appropriate for every healthcare interaction; additionally, not all patients prefer it. Now that coronavirus disease restrictions have essentially ended and an opportunity to re-assess telehealth provision in cancer care presents, we offer a framework that aims to ensure that the needs and preferences of the patient community are included in the development of telehealth provision. Stakeholders in this process include patients, patient advocates, healthcare providers, healthcare services commissioners, managers, and policy makers. The framework outlines how patient advocates can work with other stakeholders as equal partners at all stages of telehealth service development. The patient advocate community has a unique understanding of the patient perspective as well as expertise in healthcare design and delivery. This enables advocates to contribute to shaping telehealth provision, from policy and guideline formulation to patient navigation. Appropriate resources, education and training may be needed for all stakeholders to support the development of an effective telehealth system. Together with other stakeholders, patient advocates can make an important contribution to optimizing appropriate patient-centred telehealth provision in cancer care. Springer International Publishing 2023-07-26 2023 /pmc/articles/PMC10409807/ /pubmed/37493895 http://dx.doi.org/10.1007/s40271-023-00642-x Text en © The Author(s) 2023 https://creativecommons.org/licenses/by-nc/4.0/Open Access This article is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Current Opinion
Addario, Bonnie
Astratinei, Violeta
Binder, Louise
Geissler, Jan
Horn, Marcia K.
Krebs, Linda U.
Lewis, Bryan
Oliver, Kathy
Spiegel, Andrew
A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
title A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
title_full A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
title_fullStr A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
title_full_unstemmed A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
title_short A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
title_sort new framework for co-creating telehealth for cancer care with the patient community
topic Current Opinion
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10409807/
https://www.ncbi.nlm.nih.gov/pubmed/37493895
http://dx.doi.org/10.1007/s40271-023-00642-x
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