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The Minimum Data Set for Rare Diseases: Systematic Review

BACKGROUND: The minimum data set (MDS) is a collection of data elements to be grouped using a standard approach to allow the use of data for clinical and research purposes. Health data are typically voluminous, complex, and sometimes too ambiguous to generate indicators that can provide knowledge an...

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Detalles Bibliográficos
Autores principales:	Bernardi, Filipe Andrade, Mello de Oliveira, Bibiana, Bettiol Yamada, Diego, Artifon, Milena, Schmidt, Amanda Maria, Machado Scheibe, Victória, Alves, Domingos, Félix, Têmis Maria
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2023
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10415943/ https://www.ncbi.nlm.nih.gov/pubmed/37498666 http://dx.doi.org/10.2196/44641

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