Cargando…

Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study

BACKGROUND: Provision of and access to paediatric end-of-life care is inequitable, but previous research on this area has focused on perspectives of health professionals in specific settings or children with specific conditions. This qualitative study aimed to explore regional perspectives of the su...

Descripción completa

Detalles Bibliográficos
Autores principales:	Papworth, Andrew, Hackett, Julia, Beresford, Bryony, Murtagh, Fliss, Weatherly, Helen, Hinde, Sebastian, Bedendo, Andre, Walker, Gabriella, Noyes, Jane, Oddie, Sam, Vasudevan, Chakrapani, Feltbower, Richard G., Phillips, Bob, Hain, Richard, Subramanian, Gayathri, Haynes, Andrew, Fraser, Lorna K.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10428585/ https://www.ncbi.nlm.nih.gov/pubmed/37587514 http://dx.doi.org/10.1186/s12904-023-01238-w

Ejemplares similares

End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom
por: Papworth, Andrew, et al.
Publicado: (2022)

A new scale assessing the stressors and rewards of children’s hospice work
por: Papworth, Andrew, et al.
Publicado: (2023)

Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review
por: Taylor, Johanna, et al.
Publicado: (2020)

Paediatric palliative care: development and pilot study of a ‘Directory’ of life-limiting conditions
por: Hain, Richard, et al.
Publicado: (2013)

What Does Economic Evaluation Mean in the Context of Children at the End of Their Life?
por: Hinde, Sebastian, et al.
Publicado: (2021)

Development of a managed clinical network for children’s palliative care – a qualitative evaluation
por: Papworth, Andrew, et al.
Publicado: (2021)

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation
por: Coombes, Lucy, et al.
Publicado: (2023)

Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink
por: Fraser, Lorna Katharine, et al.
Publicado: (2020)

Incidence of anxiety and depression in children and young people with life-limiting conditions
por: Barker, Mary M., et al.
Publicado: (2022)

‘Cold bedrooms’ and other cooling facilities in UK children’s hospices, how they are used and why they are offered: A mixed methods study
por: Hackett, Julia, et al.
Publicado: (2021)

Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis
por: Barrett, Laura, et al.
Publicado: (2022)

Health of mothers of children with a life-limiting condition: a comparative cohort study
por: Fraser, Lorna K, et al.
Publicado: (2021)

Impact of dietary interventions in inborn errors of metabolism in paediatric dentistry: Review of the literature and case series
por: Hirst, Lorna, et al.
Publicado: (2020)

Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents and all those who care for them: A systematic scoping review
por: Booth, Alison, et al.
Publicado: (2018)

Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use
por: Coombes, Lucy H, et al.
Publicado: (2016)

‘It was like an airbag, it cushioned the blow’: A multi-site qualitative study of bereaved parents’ experiences of using cooling facilities
por: Hackett, Julia, et al.
Publicado: (2022)

Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures
por: Morris, Christopher, et al.
Publicado: (2015)

Is there a sex difference in mortality rates for deaths occurring in paediatric intensive care units? Systematic literature review protocol
por: Almossawi, Ofran, et al.
Publicado: (2021)

Social inequalities in low birthweight outcomes in Sri Lanka: evidence from the Demographic and Health Survey 2016
por: Abeywickrama, Gayathri, et al.
Publicado: (2020)

Advances and Challenges in European Paediatric Palliative Care
por: Fraser, Lorna K, et al.
Publicado: (2020)

The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: A systematic review of views from patients, carers and health-care professionals
por: Oishi, Ai, et al.
Publicado: (2014)

Comparison of ethnic group classification using naming analysis and routinely collected data: application to cancer incidence trends in children and young people
por: Smith, Lesley, et al.
Publicado: (2017)

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members
por: Coombes, Lucy, et al.
Publicado: (2023)

Patient-reported outcomes of cancer survivors in England 1–5 years after diagnosis: a cross-sectional survey
por: Glaser, Adam W, et al.
Publicado: (2013)

Effectiveness and Cost-Effectiveness of Receiving a Hearing Dog on Mental Well-Being and Health in People With Hearing Loss: Protocol for a Randomized Controlled Trial
por: Stuttard, Lucy, et al.
Publicado: (2020)

Outcomes of reablement and their measurement: Findings from an evaluation of English reablement services
por: Beresford, Bryony, et al.
Publicado: (2019)

Hearing dogs for people with severe and profound hearing loss: a wait-list design randomised controlled trial investigating their effectiveness and cost-effectiveness
por: Stuttard, Lucy, et al.
Publicado: (2021)

Correction to: Hearing dogs for people with severe and profound hearing loss: a wait-list design randomised controlled trial investigating their effectiveness and cost-effectiveness
por: Stuttard, Lucy, et al.
Publicado: (2022)

Does referral to specialist paediatric palliative care services reduce hospital admissions in oncology patients at the end of life?
por: Fraser, L K, et al.
Publicado: (2013)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study
por: Coombes, Lucy, et al.
Publicado: (2022)

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study
por: Scott, Hannah May, et al.
Publicado: (2023)

Systematic review of pharmacological therapies for the management of ischaemic pain in patients with non-reconstructable critical limb ischaemia
por: Laoire, Áine Ní, et al.
Publicado: (2018)

Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study
por: Fairlamb, Hannah J., et al.
Publicado: (2021)

The development of an instrument that can identify children with palliative care needs: the Paediatric Palliative Screening Scale (PaPaS Scale): a qualitative study approach
por: Bergstraesser, Eva, et al.
Publicado: (2013)

Children with life-limiting conditions in paediatric intensive care units: a national cohort, data linkage study
por: Fraser, Lorna K, et al.
Publicado: (2018)

COVID-19: Impact on Pediatric Palliative Care
por: Scott, Hannah May, et al.
Publicado: (2022)

Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36
por: Erez, Gilli, et al.
Publicado: (2016)

The most important components of out-of-hours community care for patients at the end of life: A Delphi study of healthcare professionals’ and patient and family carers’ perspectives
por: Goodrich, Joanna, et al.
Publicado: (2022)

Is there a sex difference in mortality rates in paediatric intensive care units?: a systematic review
por: Almossawi, Ofran, et al.
Publicado: (2023)

Models of reablement evaluation (MoRE): a study protocol of a quasi-experimental mixed methods evaluation of reablement services in England
por: Mann, Rachel, et al.
Publicado: (2016)

Cannot write session to /tmp/vufind_sessions/sess_4fse4drca3qn6k0it9rgblrtfn