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Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop

BACKGROUND: Peer support can address the informational and emotional needs of people living with chronic kidney disease (CKD) and enable self-management. We aimed to identify preferences and priorities for content, format and processes of peer support delivery for patients with non-dialysis CKD and...

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Autores principales: Elliott, Meghan J., Donald, Maoliosa, Farragher, Janine, Verdin, Nancy, Love, Shannan, Manns, Kate, Baragar, Brigitte, Sparkes, Dwight, Fox, Danielle, Hemmelgarn, Brenda R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: CMA Impact Inc. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10435241/
https://www.ncbi.nlm.nih.gov/pubmed/37582622
http://dx.doi.org/10.9778/cmajo.20220171
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author Elliott, Meghan J.
Donald, Maoliosa
Farragher, Janine
Verdin, Nancy
Love, Shannan
Manns, Kate
Baragar, Brigitte
Sparkes, Dwight
Fox, Danielle
Hemmelgarn, Brenda R.
author_facet Elliott, Meghan J.
Donald, Maoliosa
Farragher, Janine
Verdin, Nancy
Love, Shannan
Manns, Kate
Baragar, Brigitte
Sparkes, Dwight
Fox, Danielle
Hemmelgarn, Brenda R.
author_sort Elliott, Meghan J.
collection PubMed
description BACKGROUND: Peer support can address the informational and emotional needs of people living with chronic kidney disease (CKD) and enable self-management. We aimed to identify preferences and priorities for content, format and processes of peer support delivery for patients with non-dialysis CKD and their loved ones. METHODS: Using a patient-oriented research approach, we conducted a half-day, virtual consensus workshop with stakeholder participants from across Canada, including patients, caregivers, peer mentors and clinicians. Using personas (fictional characters), participants discussed and voted on preferences for delivery of peer support across format, content and process categories. We analyzed transcripts from small- and large-group discussions inductively using content analysis. RESULTS: Twenty-one stakeholders, including 9 patients and 4 caregivers, participated in the workshop. In the voting exercise on format, participants prioritized peer mentor matching, programming for both patients and caregivers, and flexible scheduling. For content, participants prioritized informational and emotional support focus, and for process, they prioritized leveraging kidney care programs and alternative sources (e.g., social media) for promotion and referral. Analysis of workshop transcripts complemented prioritization results and emphasized tailoring of peer support delivery to accommodate the diversity of people living with CKD and their support needs. This concept was elaborated in 3 themes, namely alignment of program features with needs, inclusive peer support options and multiple access points. INTERPRETATION: We identified preferences for peer support delivery for people living with CKD and underscore the importance of tailored, flexible programming in this context. Findings could be used to develop, adapt or study CKD-focused peer support interventions.
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spelling pubmed-104352412023-08-18 Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop Elliott, Meghan J. Donald, Maoliosa Farragher, Janine Verdin, Nancy Love, Shannan Manns, Kate Baragar, Brigitte Sparkes, Dwight Fox, Danielle Hemmelgarn, Brenda R. CMAJ Open Research BACKGROUND: Peer support can address the informational and emotional needs of people living with chronic kidney disease (CKD) and enable self-management. We aimed to identify preferences and priorities for content, format and processes of peer support delivery for patients with non-dialysis CKD and their loved ones. METHODS: Using a patient-oriented research approach, we conducted a half-day, virtual consensus workshop with stakeholder participants from across Canada, including patients, caregivers, peer mentors and clinicians. Using personas (fictional characters), participants discussed and voted on preferences for delivery of peer support across format, content and process categories. We analyzed transcripts from small- and large-group discussions inductively using content analysis. RESULTS: Twenty-one stakeholders, including 9 patients and 4 caregivers, participated in the workshop. In the voting exercise on format, participants prioritized peer mentor matching, programming for both patients and caregivers, and flexible scheduling. For content, participants prioritized informational and emotional support focus, and for process, they prioritized leveraging kidney care programs and alternative sources (e.g., social media) for promotion and referral. Analysis of workshop transcripts complemented prioritization results and emphasized tailoring of peer support delivery to accommodate the diversity of people living with CKD and their support needs. This concept was elaborated in 3 themes, namely alignment of program features with needs, inclusive peer support options and multiple access points. INTERPRETATION: We identified preferences for peer support delivery for people living with CKD and underscore the importance of tailored, flexible programming in this context. Findings could be used to develop, adapt or study CKD-focused peer support interventions. CMA Impact Inc. 2023-08-15 /pmc/articles/PMC10435241/ /pubmed/37582622 http://dx.doi.org/10.9778/cmajo.20220171 Text en © 2023 CMA Impact Inc. or its licensors https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY-NC-ND 4.0) licence, which permits use, distribution and reproduction in any medium, provided that the original publication is properly cited, the use is noncommercial (i.e., research or educational use), and no modifications or adaptations are made. See: https://creativecommons.org/licenses/by-nc-nd/4.0/
spellingShingle Research
Elliott, Meghan J.
Donald, Maoliosa
Farragher, Janine
Verdin, Nancy
Love, Shannan
Manns, Kate
Baragar, Brigitte
Sparkes, Dwight
Fox, Danielle
Hemmelgarn, Brenda R.
Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
title Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
title_full Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
title_fullStr Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
title_full_unstemmed Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
title_short Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
title_sort priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10435241/
https://www.ncbi.nlm.nih.gov/pubmed/37582622
http://dx.doi.org/10.9778/cmajo.20220171
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