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Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities

The COVID-19 pandemic has significantly impacted caregivers, especially those raising a child with an intellectual/developmental disability (IDD). While research has shown substantial disruption to the family, school, and occupational lives of the IDD community, little is known about the long-term i...

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Autores principales: Northrup, R. A., Jones, E., Singh, V., Holingue, C., Meck, M., Gurnett, C. A., van Stone, M., Kalb, L. G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10440736/
https://www.ncbi.nlm.nih.gov/pubmed/37609365
http://dx.doi.org/10.3389/fped.2023.1196275
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author Northrup, R. A.
Jones, E.
Singh, V.
Holingue, C.
Meck, M.
Gurnett, C. A.
van Stone, M.
Kalb, L. G.
author_facet Northrup, R. A.
Jones, E.
Singh, V.
Holingue, C.
Meck, M.
Gurnett, C. A.
van Stone, M.
Kalb, L. G.
author_sort Northrup, R. A.
collection PubMed
description The COVID-19 pandemic has significantly impacted caregivers, especially those raising a child with an intellectual/developmental disability (IDD). While research has shown substantial disruption to the family, school, and occupational lives of the IDD community, little is known about the long-term impacts of COVID-19. To address this question, 249 caregivers were surveyed via an online questionnaire, between April and August of 2022 (more than 2 years into the pandemic) about potential impacts of the COVID-19 pandemic on their child's access to health- and school-based therapeutic services, caregiver mental health, and family life. The majority of caregivers reported disruptions in access to and quality of school-based therapeutic services for their child as well as a reduction in educational accommodations in the 2021–2022 academic year. Nearly half of caregivers reported feeling anxious and almost a quarter reported feeling depressed for the majority of their days. More than half of respondents reported decreased social support, and one-fifth reported employment disruptions and decreased access to food. These findings suggest that families of children with IDD are still experiencing ongoing negative impacts of the pandemic, emphasizing the critical need for continued support in the wake of the initial and more obvious disruptions caused by the COVID-19 outbreak.
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spelling pubmed-104407362023-08-22 Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities Northrup, R. A. Jones, E. Singh, V. Holingue, C. Meck, M. Gurnett, C. A. van Stone, M. Kalb, L. G. Front Pediatr Pediatrics The COVID-19 pandemic has significantly impacted caregivers, especially those raising a child with an intellectual/developmental disability (IDD). While research has shown substantial disruption to the family, school, and occupational lives of the IDD community, little is known about the long-term impacts of COVID-19. To address this question, 249 caregivers were surveyed via an online questionnaire, between April and August of 2022 (more than 2 years into the pandemic) about potential impacts of the COVID-19 pandemic on their child's access to health- and school-based therapeutic services, caregiver mental health, and family life. The majority of caregivers reported disruptions in access to and quality of school-based therapeutic services for their child as well as a reduction in educational accommodations in the 2021–2022 academic year. Nearly half of caregivers reported feeling anxious and almost a quarter reported feeling depressed for the majority of their days. More than half of respondents reported decreased social support, and one-fifth reported employment disruptions and decreased access to food. These findings suggest that families of children with IDD are still experiencing ongoing negative impacts of the pandemic, emphasizing the critical need for continued support in the wake of the initial and more obvious disruptions caused by the COVID-19 outbreak. Frontiers Media S.A. 2023-08-07 /pmc/articles/PMC10440736/ /pubmed/37609365 http://dx.doi.org/10.3389/fped.2023.1196275 Text en © 2023 Northrup, Jones, Singh, Holingue, Meck, Gurnett, van Stone and Kalb. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (https://creativecommons.org/licenses/by/4.0/) . The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Pediatrics
Northrup, R. A.
Jones, E.
Singh, V.
Holingue, C.
Meck, M.
Gurnett, C. A.
van Stone, M.
Kalb, L. G.
Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities
title Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities
title_full Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities
title_fullStr Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities
title_full_unstemmed Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities
title_short Caregiver perspectives on the continued impact of the COVID-19 pandemic on children with intellectual/developmental disabilities
title_sort caregiver perspectives on the continued impact of the covid-19 pandemic on children with intellectual/developmental disabilities
topic Pediatrics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10440736/
https://www.ncbi.nlm.nih.gov/pubmed/37609365
http://dx.doi.org/10.3389/fped.2023.1196275
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