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Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem

INTRODUCTION: Care is often inadequate and poorly integrated after a dementia diagnosis. Research and policy highlight the unaffordability and unsustainability of specialist-led support, and instead suggest a task-shared model, led by primary care. This study is part of the PriDem primary care led p...

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Autores principales: Griffiths, Sarah, Spencer, Emily, Wilcock, Jane, Bamford, Claire, Wheatley, Alison, Brunskill, Greta, D'Andrea, Federica, Walters, Kate R, Lago, Natalia, O'Keeffe, Aidan, Hunter, Rachael, Tuijt, Remco, Harrison Dening, Karen, Banerjee, Sube, Manthorpe, Jill, Allan, Louise, Robinson, Louise, Rait, Greta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10441044/
https://www.ncbi.nlm.nih.gov/pubmed/37597869
http://dx.doi.org/10.1136/bmjopen-2022-070868
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author Griffiths, Sarah
Spencer, Emily
Wilcock, Jane
Bamford, Claire
Wheatley, Alison
Brunskill, Greta
D'Andrea, Federica
Walters, Kate R
Lago, Natalia
O'Keeffe, Aidan
Hunter, Rachael
Tuijt, Remco
Harrison Dening, Karen
Banerjee, Sube
Manthorpe, Jill
Allan, Louise
Robinson, Louise
Rait, Greta
author_facet Griffiths, Sarah
Spencer, Emily
Wilcock, Jane
Bamford, Claire
Wheatley, Alison
Brunskill, Greta
D'Andrea, Federica
Walters, Kate R
Lago, Natalia
O'Keeffe, Aidan
Hunter, Rachael
Tuijt, Remco
Harrison Dening, Karen
Banerjee, Sube
Manthorpe, Jill
Allan, Louise
Robinson, Louise
Rait, Greta
author_sort Griffiths, Sarah
collection PubMed
description INTRODUCTION: Care is often inadequate and poorly integrated after a dementia diagnosis. Research and policy highlight the unaffordability and unsustainability of specialist-led support, and instead suggest a task-shared model, led by primary care. This study is part of the PriDem primary care led postdiagnostic dementia care research programme and will assess delivery of an evidence-informed, primary care based, person-centred intervention. The intervention involves Clinical Dementia Leads (CDLs) working in primary care to develop effective dementia care systems that build workforce capacity and support teams to deliver tailored support to people living with dementia and their carers. METHODS AND ANALYSIS: This is a 15-month mixed-methods feasibility and implementation study, situated in four National Health Service (NHS) primary care networks in England. The primary outcome is adoption of personalised care planning by participating general practices, assessed through a patient records audit. Feasibility outcomes include recruitment and retention; appropriateness and acceptability of outcome measures; acceptability, feasibility and fidelity of intervention components. People living with dementia (n=80) and carers (n=66) will be recruited through participating general practices and will complete standardised measures of health and well-being. Participant service use data will be extracted from electronic medical records. A process evaluation will explore implementation barriers and facilitators through methods including semistructured interviews with people living with dementia, carers and professionals; observation of CDL engagement with practice staff; and a practice fidelity log. Process evaluation data will be analysed qualitatively using codebook thematic analysis, and quantitatively using descriptive statistics. Economic analysis will determine intervention cost-effectiveness. ETHICS AND DISSEMINATION: The study has received favourable ethical opinion from Wales REC4. NHS Confidentiality Advisory Group support allows researchers preconsent access to patient data. Results will inform intervention adaptations and a future large-scale evaluation. Dissemination through peer-review journals, engagement with policy-makers and conferences will inform recommendations for dementia services commissioning. TRIAL REGISTRATION NUMBER: ISRCTN11677384.
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spelling pubmed-104410442023-08-22 Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem Griffiths, Sarah Spencer, Emily Wilcock, Jane Bamford, Claire Wheatley, Alison Brunskill, Greta D'Andrea, Federica Walters, Kate R Lago, Natalia O'Keeffe, Aidan Hunter, Rachael Tuijt, Remco Harrison Dening, Karen Banerjee, Sube Manthorpe, Jill Allan, Louise Robinson, Louise Rait, Greta BMJ Open General practice / Family practice INTRODUCTION: Care is often inadequate and poorly integrated after a dementia diagnosis. Research and policy highlight the unaffordability and unsustainability of specialist-led support, and instead suggest a task-shared model, led by primary care. This study is part of the PriDem primary care led postdiagnostic dementia care research programme and will assess delivery of an evidence-informed, primary care based, person-centred intervention. The intervention involves Clinical Dementia Leads (CDLs) working in primary care to develop effective dementia care systems that build workforce capacity and support teams to deliver tailored support to people living with dementia and their carers. METHODS AND ANALYSIS: This is a 15-month mixed-methods feasibility and implementation study, situated in four National Health Service (NHS) primary care networks in England. The primary outcome is adoption of personalised care planning by participating general practices, assessed through a patient records audit. Feasibility outcomes include recruitment and retention; appropriateness and acceptability of outcome measures; acceptability, feasibility and fidelity of intervention components. People living with dementia (n=80) and carers (n=66) will be recruited through participating general practices and will complete standardised measures of health and well-being. Participant service use data will be extracted from electronic medical records. A process evaluation will explore implementation barriers and facilitators through methods including semistructured interviews with people living with dementia, carers and professionals; observation of CDL engagement with practice staff; and a practice fidelity log. Process evaluation data will be analysed qualitatively using codebook thematic analysis, and quantitatively using descriptive statistics. Economic analysis will determine intervention cost-effectiveness. ETHICS AND DISSEMINATION: The study has received favourable ethical opinion from Wales REC4. NHS Confidentiality Advisory Group support allows researchers preconsent access to patient data. Results will inform intervention adaptations and a future large-scale evaluation. Dissemination through peer-review journals, engagement with policy-makers and conferences will inform recommendations for dementia services commissioning. TRIAL REGISTRATION NUMBER: ISRCTN11677384. BMJ Publishing Group 2023-08-18 /pmc/articles/PMC10441044/ /pubmed/37597869 http://dx.doi.org/10.1136/bmjopen-2022-070868 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle General practice / Family practice
Griffiths, Sarah
Spencer, Emily
Wilcock, Jane
Bamford, Claire
Wheatley, Alison
Brunskill, Greta
D'Andrea, Federica
Walters, Kate R
Lago, Natalia
O'Keeffe, Aidan
Hunter, Rachael
Tuijt, Remco
Harrison Dening, Karen
Banerjee, Sube
Manthorpe, Jill
Allan, Louise
Robinson, Louise
Rait, Greta
Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem
title Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem
title_full Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem
title_fullStr Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem
title_full_unstemmed Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem
title_short Protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: PriDem
title_sort protocol for the feasibility and implementation study of a model of best practice in primary care led postdiagnostic dementia care: pridem
topic General practice / Family practice
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10441044/
https://www.ncbi.nlm.nih.gov/pubmed/37597869
http://dx.doi.org/10.1136/bmjopen-2022-070868
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