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Barriers to and Facilitators of Providing Care for Adolescents Suffering from Rare Diseases: A Mixed Systematic Review

Rare Diseases (RDs) in adolescents are characterized by low frequency and clinical heterogeneity, are chronic and deliberating and demand a multidisciplinary approach as well as costly and specialized treatments. Comprehending patients’ and parents’ needs through a mixed systematic review is essenti...

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Detalles Bibliográficos
Autores principales:	Tsitsani, Pelagia, Katsaras, Georgios, Soteriades, Elpidoforos S.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2023
Materias:	Systematic Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10443320/ https://www.ncbi.nlm.nih.gov/pubmed/37606447 http://dx.doi.org/10.3390/pediatric15030043

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