Toward representative genomic research: the children’s rare disease cohorts experience

BACKGROUND: Due to racial, cultural, and linguistic marginalization, some populations experience disproportionate barriers to genetic testing in both clinical and research settings. It is difficult to track such disparities due to non-inclusive self-reported race and ethnicity categories within the...

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Detalles Bibliográficos
Autores principales: Frazier, Zoë J., Brown, Eurnestine, Rockowitz, Shira, Lee, Ted, Zhang, Bo, Sveden, Abigail, Chamberlin, Nancy L., Dies, Kira A., Poduri, Annapurna, Sliz, Piotr, Chopra, Maya
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Diversity and Inclusion in Rare Disease Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10445838/
https://www.ncbi.nlm.nih.gov/pubmed/37621556
http://dx.doi.org/10.1177/26330040231181406

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10445838/
https://www.ncbi.nlm.nih.gov/pubmed/37621556
http://dx.doi.org/10.1177/26330040231181406

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