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Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines

Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recomm...

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Autores principales: Pickering, Brian, Biro, Timea, Austin, Claire C., Bernier, Alexander, Bezuidenhout, Louise, Casorrán, Carlos, Crawley, Francis P., David, Romain, Engelhardt, Claudia, Mitrea, Geta, Mochmann, Ingvill Constanze, Nagrani, Rajini, O'Brien-Uhlmansiek, Mary, Parker, Simon, Wang, Minglu, Castro, Leyla Jael, Cournia, Zoe, Dharmawardena, Kheeran, Diallo, Gayo, Dillo, Ingrid, Gonzalez-Beltran, Alejandra, Gururaj, Anupama, Gutam, Sridhar, Harrower, Natalie, Jonnagaddala, Jitendra, McNeill, Katherine, Mietchen, Daniel, Pienta, Amy, Polydoratou, Panayiota, Tovani-Palone, Marcos Roberto
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10446077/
https://www.ncbi.nlm.nih.gov/pubmed/37645170
http://dx.doi.org/10.12688/openreseurope.13369.1
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author Pickering, Brian
Biro, Timea
Austin, Claire C.
Bernier, Alexander
Bezuidenhout, Louise
Casorrán, Carlos
Crawley, Francis P.
David, Romain
Engelhardt, Claudia
Mitrea, Geta
Mochmann, Ingvill Constanze
Nagrani, Rajini
O'Brien-Uhlmansiek, Mary
Parker, Simon
Wang, Minglu
Castro, Leyla Jael
Cournia, Zoe
Dharmawardena, Kheeran
Diallo, Gayo
Dillo, Ingrid
Gonzalez-Beltran, Alejandra
Gururaj, Anupama
Gutam, Sridhar
Harrower, Natalie
Jonnagaddala, Jitendra
McNeill, Katherine
Mietchen, Daniel
Pienta, Amy
Polydoratou, Panayiota
Tovani-Palone, Marcos Roberto
author_facet Pickering, Brian
Biro, Timea
Austin, Claire C.
Bernier, Alexander
Bezuidenhout, Louise
Casorrán, Carlos
Crawley, Francis P.
David, Romain
Engelhardt, Claudia
Mitrea, Geta
Mochmann, Ingvill Constanze
Nagrani, Rajini
O'Brien-Uhlmansiek, Mary
Parker, Simon
Wang, Minglu
Castro, Leyla Jael
Cournia, Zoe
Dharmawardena, Kheeran
Diallo, Gayo
Dillo, Ingrid
Gonzalez-Beltran, Alejandra
Gururaj, Anupama
Gutam, Sridhar
Harrower, Natalie
Jonnagaddala, Jitendra
McNeill, Katherine
Mietchen, Daniel
Pienta, Amy
Polydoratou, Panayiota
Tovani-Palone, Marcos Roberto
author_sort Pickering, Brian
collection PubMed
description Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts.
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spelling pubmed-104460772023-08-29 Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines Pickering, Brian Biro, Timea Austin, Claire C. Bernier, Alexander Bezuidenhout, Louise Casorrán, Carlos Crawley, Francis P. David, Romain Engelhardt, Claudia Mitrea, Geta Mochmann, Ingvill Constanze Nagrani, Rajini O'Brien-Uhlmansiek, Mary Parker, Simon Wang, Minglu Castro, Leyla Jael Cournia, Zoe Dharmawardena, Kheeran Diallo, Gayo Dillo, Ingrid Gonzalez-Beltran, Alejandra Gururaj, Anupama Gutam, Sridhar Harrower, Natalie Jonnagaddala, Jitendra McNeill, Katherine Mietchen, Daniel Pienta, Amy Polydoratou, Panayiota Tovani-Palone, Marcos Roberto Open Res Eur Research Article Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts. F1000 Research Limited 2021-06-16 /pmc/articles/PMC10446077/ /pubmed/37645170 http://dx.doi.org/10.12688/openreseurope.13369.1 Text en Copyright: © 2021 Pickering B et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Pickering, Brian
Biro, Timea
Austin, Claire C.
Bernier, Alexander
Bezuidenhout, Louise
Casorrán, Carlos
Crawley, Francis P.
David, Romain
Engelhardt, Claudia
Mitrea, Geta
Mochmann, Ingvill Constanze
Nagrani, Rajini
O'Brien-Uhlmansiek, Mary
Parker, Simon
Wang, Minglu
Castro, Leyla Jael
Cournia, Zoe
Dharmawardena, Kheeran
Diallo, Gayo
Dillo, Ingrid
Gonzalez-Beltran, Alejandra
Gururaj, Anupama
Gutam, Sridhar
Harrower, Natalie
Jonnagaddala, Jitendra
McNeill, Katherine
Mietchen, Daniel
Pienta, Amy
Polydoratou, Panayiota
Tovani-Palone, Marcos Roberto
Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines
title Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines
title_full Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines
title_fullStr Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines
title_full_unstemmed Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines
title_short Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines
title_sort radical collaboration during a global health emergency: development of the rda covid-19 data sharing recommendations and guidelines
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10446077/
https://www.ncbi.nlm.nih.gov/pubmed/37645170
http://dx.doi.org/10.12688/openreseurope.13369.1
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