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Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines
Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recomm...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
F1000 Research Limited
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10446077/ https://www.ncbi.nlm.nih.gov/pubmed/37645170 http://dx.doi.org/10.12688/openreseurope.13369.1 |
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author | Pickering, Brian Biro, Timea Austin, Claire C. Bernier, Alexander Bezuidenhout, Louise Casorrán, Carlos Crawley, Francis P. David, Romain Engelhardt, Claudia Mitrea, Geta Mochmann, Ingvill Constanze Nagrani, Rajini O'Brien-Uhlmansiek, Mary Parker, Simon Wang, Minglu Castro, Leyla Jael Cournia, Zoe Dharmawardena, Kheeran Diallo, Gayo Dillo, Ingrid Gonzalez-Beltran, Alejandra Gururaj, Anupama Gutam, Sridhar Harrower, Natalie Jonnagaddala, Jitendra McNeill, Katherine Mietchen, Daniel Pienta, Amy Polydoratou, Panayiota Tovani-Palone, Marcos Roberto |
author_facet | Pickering, Brian Biro, Timea Austin, Claire C. Bernier, Alexander Bezuidenhout, Louise Casorrán, Carlos Crawley, Francis P. David, Romain Engelhardt, Claudia Mitrea, Geta Mochmann, Ingvill Constanze Nagrani, Rajini O'Brien-Uhlmansiek, Mary Parker, Simon Wang, Minglu Castro, Leyla Jael Cournia, Zoe Dharmawardena, Kheeran Diallo, Gayo Dillo, Ingrid Gonzalez-Beltran, Alejandra Gururaj, Anupama Gutam, Sridhar Harrower, Natalie Jonnagaddala, Jitendra McNeill, Katherine Mietchen, Daniel Pienta, Amy Polydoratou, Panayiota Tovani-Palone, Marcos Roberto |
author_sort | Pickering, Brian |
collection | PubMed |
description | Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts. |
format | Online Article Text |
id | pubmed-10446077 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | F1000 Research Limited |
record_format | MEDLINE/PubMed |
spelling | pubmed-104460772023-08-29 Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines Pickering, Brian Biro, Timea Austin, Claire C. Bernier, Alexander Bezuidenhout, Louise Casorrán, Carlos Crawley, Francis P. David, Romain Engelhardt, Claudia Mitrea, Geta Mochmann, Ingvill Constanze Nagrani, Rajini O'Brien-Uhlmansiek, Mary Parker, Simon Wang, Minglu Castro, Leyla Jael Cournia, Zoe Dharmawardena, Kheeran Diallo, Gayo Dillo, Ingrid Gonzalez-Beltran, Alejandra Gururaj, Anupama Gutam, Sridhar Harrower, Natalie Jonnagaddala, Jitendra McNeill, Katherine Mietchen, Daniel Pienta, Amy Polydoratou, Panayiota Tovani-Palone, Marcos Roberto Open Res Eur Research Article Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts. F1000 Research Limited 2021-06-16 /pmc/articles/PMC10446077/ /pubmed/37645170 http://dx.doi.org/10.12688/openreseurope.13369.1 Text en Copyright: © 2021 Pickering B et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Article Pickering, Brian Biro, Timea Austin, Claire C. Bernier, Alexander Bezuidenhout, Louise Casorrán, Carlos Crawley, Francis P. David, Romain Engelhardt, Claudia Mitrea, Geta Mochmann, Ingvill Constanze Nagrani, Rajini O'Brien-Uhlmansiek, Mary Parker, Simon Wang, Minglu Castro, Leyla Jael Cournia, Zoe Dharmawardena, Kheeran Diallo, Gayo Dillo, Ingrid Gonzalez-Beltran, Alejandra Gururaj, Anupama Gutam, Sridhar Harrower, Natalie Jonnagaddala, Jitendra McNeill, Katherine Mietchen, Daniel Pienta, Amy Polydoratou, Panayiota Tovani-Palone, Marcos Roberto Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines |
title | Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines |
title_full | Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines |
title_fullStr | Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines |
title_full_unstemmed | Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines |
title_short | Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines |
title_sort | radical collaboration during a global health emergency: development of the rda covid-19 data sharing recommendations and guidelines |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10446077/ https://www.ncbi.nlm.nih.gov/pubmed/37645170 http://dx.doi.org/10.12688/openreseurope.13369.1 |
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