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FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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F1000 Research Limited
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10446092/ https://www.ncbi.nlm.nih.gov/pubmed/37645268 http://dx.doi.org/10.12688/openreseurope.14349.2 |
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author | Alvarez-Romero, Celia Martínez-García, Alicia Sinaci, A. Anil Gencturk, Mert Méndez, Eva Hernández-Pérez, Tony Liperoti, Rosa Angioletti, Carmen Löbe, Matthias Ganapathy, Nagarajan Deserno, Thomas M. Almada, Marta Costa, Elisio Chronaki, Catherine Cangioli, Giorgio Cornet, Ronald Poblador-Plou, Beatriz Carmona-Pírez, Jonás Gimeno-Miguel, Antonio Poncel-Falcó, Antonio Prados-Torres, Alexandra Kovacevic, Tomi Zaric, Bojan Bokan, Darijo Hromis, Sanja Djekic Malbasa, Jelena Rapallo Fernández, Carlos Velázquez Fernández, Teresa Rochat, Jessica Gaudet-Blavignac, Christophe Lovis, Christian Weber, Patrick Quintero, Miriam Perez-Perez, Manuel M. Ashley, Kevin Horton, Laurence Parra Calderón, Carlos Luis |
author_facet | Alvarez-Romero, Celia Martínez-García, Alicia Sinaci, A. Anil Gencturk, Mert Méndez, Eva Hernández-Pérez, Tony Liperoti, Rosa Angioletti, Carmen Löbe, Matthias Ganapathy, Nagarajan Deserno, Thomas M. Almada, Marta Costa, Elisio Chronaki, Catherine Cangioli, Giorgio Cornet, Ronald Poblador-Plou, Beatriz Carmona-Pírez, Jonás Gimeno-Miguel, Antonio Poncel-Falcó, Antonio Prados-Torres, Alexandra Kovacevic, Tomi Zaric, Bojan Bokan, Darijo Hromis, Sanja Djekic Malbasa, Jelena Rapallo Fernández, Carlos Velázquez Fernández, Teresa Rochat, Jessica Gaudet-Blavignac, Christophe Lovis, Christian Weber, Patrick Quintero, Miriam Perez-Perez, Manuel M. Ashley, Kevin Horton, Laurence Parra Calderón, Carlos Luis |
author_sort | Alvarez-Romero, Celia |
collection | PubMed |
description | Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators’ performance. |
format | Online Article Text |
id | pubmed-10446092 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | F1000 Research Limited |
record_format | MEDLINE/PubMed |
spelling | pubmed-104460922023-08-29 FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research Alvarez-Romero, Celia Martínez-García, Alicia Sinaci, A. Anil Gencturk, Mert Méndez, Eva Hernández-Pérez, Tony Liperoti, Rosa Angioletti, Carmen Löbe, Matthias Ganapathy, Nagarajan Deserno, Thomas M. Almada, Marta Costa, Elisio Chronaki, Catherine Cangioli, Giorgio Cornet, Ronald Poblador-Plou, Beatriz Carmona-Pírez, Jonás Gimeno-Miguel, Antonio Poncel-Falcó, Antonio Prados-Torres, Alexandra Kovacevic, Tomi Zaric, Bojan Bokan, Darijo Hromis, Sanja Djekic Malbasa, Jelena Rapallo Fernández, Carlos Velázquez Fernández, Teresa Rochat, Jessica Gaudet-Blavignac, Christophe Lovis, Christian Weber, Patrick Quintero, Miriam Perez-Perez, Manuel M. Ashley, Kevin Horton, Laurence Parra Calderón, Carlos Luis Open Res Eur Brief Report Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators’ performance. F1000 Research Limited 2022-05-31 /pmc/articles/PMC10446092/ /pubmed/37645268 http://dx.doi.org/10.12688/openreseurope.14349.2 Text en Copyright: © 2022 Alvarez-Romero C et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Brief Report Alvarez-Romero, Celia Martínez-García, Alicia Sinaci, A. Anil Gencturk, Mert Méndez, Eva Hernández-Pérez, Tony Liperoti, Rosa Angioletti, Carmen Löbe, Matthias Ganapathy, Nagarajan Deserno, Thomas M. Almada, Marta Costa, Elisio Chronaki, Catherine Cangioli, Giorgio Cornet, Ronald Poblador-Plou, Beatriz Carmona-Pírez, Jonás Gimeno-Miguel, Antonio Poncel-Falcó, Antonio Prados-Torres, Alexandra Kovacevic, Tomi Zaric, Bojan Bokan, Darijo Hromis, Sanja Djekic Malbasa, Jelena Rapallo Fernández, Carlos Velázquez Fernández, Teresa Rochat, Jessica Gaudet-Blavignac, Christophe Lovis, Christian Weber, Patrick Quintero, Miriam Perez-Perez, Manuel M. Ashley, Kevin Horton, Laurence Parra Calderón, Carlos Luis FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research |
title | FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research |
title_full | FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research |
title_fullStr | FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research |
title_full_unstemmed | FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research |
title_short | FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research |
title_sort | fair4health: findable, accessible, interoperable and reusable data to foster health research |
topic | Brief Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10446092/ https://www.ncbi.nlm.nih.gov/pubmed/37645268 http://dx.doi.org/10.12688/openreseurope.14349.2 |
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