Cargando…
_version_ 1785094327222927360
author Alvarez-Romero, Celia
Martínez-García, Alicia
Sinaci, A. Anil
Gencturk, Mert
Méndez, Eva
Hernández-Pérez, Tony
Liperoti, Rosa
Angioletti, Carmen
Löbe, Matthias
Ganapathy, Nagarajan
Deserno, Thomas M.
Almada, Marta
Costa, Elisio
Chronaki, Catherine
Cangioli, Giorgio
Cornet, Ronald
Poblador-Plou, Beatriz
Carmona-Pírez, Jonás
Gimeno-Miguel, Antonio
Poncel-Falcó, Antonio
Prados-Torres, Alexandra
Kovacevic, Tomi
Zaric, Bojan
Bokan, Darijo
Hromis, Sanja
Djekic Malbasa, Jelena
Rapallo Fernández, Carlos
Velázquez Fernández, Teresa
Rochat, Jessica
Gaudet-Blavignac, Christophe
Lovis, Christian
Weber, Patrick
Quintero, Miriam
Perez-Perez, Manuel M.
Ashley, Kevin
Horton, Laurence
Parra Calderón, Carlos Luis
author_facet Alvarez-Romero, Celia
Martínez-García, Alicia
Sinaci, A. Anil
Gencturk, Mert
Méndez, Eva
Hernández-Pérez, Tony
Liperoti, Rosa
Angioletti, Carmen
Löbe, Matthias
Ganapathy, Nagarajan
Deserno, Thomas M.
Almada, Marta
Costa, Elisio
Chronaki, Catherine
Cangioli, Giorgio
Cornet, Ronald
Poblador-Plou, Beatriz
Carmona-Pírez, Jonás
Gimeno-Miguel, Antonio
Poncel-Falcó, Antonio
Prados-Torres, Alexandra
Kovacevic, Tomi
Zaric, Bojan
Bokan, Darijo
Hromis, Sanja
Djekic Malbasa, Jelena
Rapallo Fernández, Carlos
Velázquez Fernández, Teresa
Rochat, Jessica
Gaudet-Blavignac, Christophe
Lovis, Christian
Weber, Patrick
Quintero, Miriam
Perez-Perez, Manuel M.
Ashley, Kevin
Horton, Laurence
Parra Calderón, Carlos Luis
author_sort Alvarez-Romero, Celia
collection PubMed
description Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators’ performance.
format Online
Article
Text
id pubmed-10446092
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher F1000 Research Limited
record_format MEDLINE/PubMed
spelling pubmed-104460922023-08-29 FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research Alvarez-Romero, Celia Martínez-García, Alicia Sinaci, A. Anil Gencturk, Mert Méndez, Eva Hernández-Pérez, Tony Liperoti, Rosa Angioletti, Carmen Löbe, Matthias Ganapathy, Nagarajan Deserno, Thomas M. Almada, Marta Costa, Elisio Chronaki, Catherine Cangioli, Giorgio Cornet, Ronald Poblador-Plou, Beatriz Carmona-Pírez, Jonás Gimeno-Miguel, Antonio Poncel-Falcó, Antonio Prados-Torres, Alexandra Kovacevic, Tomi Zaric, Bojan Bokan, Darijo Hromis, Sanja Djekic Malbasa, Jelena Rapallo Fernández, Carlos Velázquez Fernández, Teresa Rochat, Jessica Gaudet-Blavignac, Christophe Lovis, Christian Weber, Patrick Quintero, Miriam Perez-Perez, Manuel M. Ashley, Kevin Horton, Laurence Parra Calderón, Carlos Luis Open Res Eur Brief Report Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators’ performance. F1000 Research Limited 2022-05-31 /pmc/articles/PMC10446092/ /pubmed/37645268 http://dx.doi.org/10.12688/openreseurope.14349.2 Text en Copyright: © 2022 Alvarez-Romero C et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Brief Report
Alvarez-Romero, Celia
Martínez-García, Alicia
Sinaci, A. Anil
Gencturk, Mert
Méndez, Eva
Hernández-Pérez, Tony
Liperoti, Rosa
Angioletti, Carmen
Löbe, Matthias
Ganapathy, Nagarajan
Deserno, Thomas M.
Almada, Marta
Costa, Elisio
Chronaki, Catherine
Cangioli, Giorgio
Cornet, Ronald
Poblador-Plou, Beatriz
Carmona-Pírez, Jonás
Gimeno-Miguel, Antonio
Poncel-Falcó, Antonio
Prados-Torres, Alexandra
Kovacevic, Tomi
Zaric, Bojan
Bokan, Darijo
Hromis, Sanja
Djekic Malbasa, Jelena
Rapallo Fernández, Carlos
Velázquez Fernández, Teresa
Rochat, Jessica
Gaudet-Blavignac, Christophe
Lovis, Christian
Weber, Patrick
Quintero, Miriam
Perez-Perez, Manuel M.
Ashley, Kevin
Horton, Laurence
Parra Calderón, Carlos Luis
FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
title FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
title_full FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
title_fullStr FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
title_full_unstemmed FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
title_short FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
title_sort fair4health: findable, accessible, interoperable and reusable data to foster health research
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10446092/
https://www.ncbi.nlm.nih.gov/pubmed/37645268
http://dx.doi.org/10.12688/openreseurope.14349.2
work_keys_str_mv AT alvarezromerocelia fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT martinezgarciaalicia fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT sinaciaanil fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT gencturkmert fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT mendezeva fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT hernandezpereztony fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT liperotirosa fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT angioletticarmen fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT lobematthias fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT ganapathynagarajan fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT desernothomasm fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT almadamarta fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT costaelisio fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT chronakicatherine fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT cangioligiorgio fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT cornetronald fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT pobladorploubeatriz fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT carmonapirezjonas fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT gimenomiguelantonio fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT poncelfalcoantonio fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT pradostorresalexandra fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT kovacevictomi fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT zaricbojan fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT bokandarijo fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT hromissanja fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT djekicmalbasajelena fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT rapallofernandezcarlos fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT velazquezfernandezteresa fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT rochatjessica fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT gaudetblavignacchristophe fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT lovischristian fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT weberpatrick fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT quinteromiriam fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT perezperezmanuelm fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT ashleykevin fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT hortonlaurence fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch
AT parracalderoncarlosluis fair4healthfindableaccessibleinteroperableandreusabledatatofosterhealthresearch