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The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives

Although extensive research has been conducted worldwide to investigate the diagnostic process of Autism Spectrum Disorder (ASD), Jordanian parents’ experiences have been overlooked. This study explored parents’ journeys toward receiving diagnoses for their children with ASD. In particular, it aimed...

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Autores principales: Hyassat, Mizyed, Al-Makahleh, Ahmad, Rahahleh, Zahraa, Al-Zyoud, Nawaf
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10453648/
https://www.ncbi.nlm.nih.gov/pubmed/37628393
http://dx.doi.org/10.3390/children10081394
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author Hyassat, Mizyed
Al-Makahleh, Ahmad
Rahahleh, Zahraa
Al-Zyoud, Nawaf
author_facet Hyassat, Mizyed
Al-Makahleh, Ahmad
Rahahleh, Zahraa
Al-Zyoud, Nawaf
author_sort Hyassat, Mizyed
collection PubMed
description Although extensive research has been conducted worldwide to investigate the diagnostic process of Autism Spectrum Disorder (ASD), Jordanian parents’ experiences have been overlooked. This study explored parents’ journeys toward receiving diagnoses for their children with ASD. In particular, it aimed to provide a clear picture of the process for obtaining these diagnoses for children in Jordan. Methods: Eighteen semi-structured interviews were carried out with 12 mothers and six fathers of children with ASD aged 5 to 11 years old. Results: The coding process was based on a thematic analysis method and resulted in the identification of three overlapping themes: dissatisfaction with professionals’ abilities to approach parents, an unstructured diagnostic process, and perspectives on diagnosis tools. Conclusions: Our data upheld the idea that parental satisfaction with the diagnostic process is influenced by the duration of the process, the information provided, the support offered, and the communication approach used by professionals. Within the local cultural context, parents were significantly impacted by the societal stigma associated with disability when they sought diagnoses for their children with ASD.
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spelling pubmed-104536482023-08-26 The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives Hyassat, Mizyed Al-Makahleh, Ahmad Rahahleh, Zahraa Al-Zyoud, Nawaf Children (Basel) Article Although extensive research has been conducted worldwide to investigate the diagnostic process of Autism Spectrum Disorder (ASD), Jordanian parents’ experiences have been overlooked. This study explored parents’ journeys toward receiving diagnoses for their children with ASD. In particular, it aimed to provide a clear picture of the process for obtaining these diagnoses for children in Jordan. Methods: Eighteen semi-structured interviews were carried out with 12 mothers and six fathers of children with ASD aged 5 to 11 years old. Results: The coding process was based on a thematic analysis method and resulted in the identification of three overlapping themes: dissatisfaction with professionals’ abilities to approach parents, an unstructured diagnostic process, and perspectives on diagnosis tools. Conclusions: Our data upheld the idea that parental satisfaction with the diagnostic process is influenced by the duration of the process, the information provided, the support offered, and the communication approach used by professionals. Within the local cultural context, parents were significantly impacted by the societal stigma associated with disability when they sought diagnoses for their children with ASD. MDPI 2023-08-15 /pmc/articles/PMC10453648/ /pubmed/37628393 http://dx.doi.org/10.3390/children10081394 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Hyassat, Mizyed
Al-Makahleh, Ahmad
Rahahleh, Zahraa
Al-Zyoud, Nawaf
The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives
title The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives
title_full The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives
title_fullStr The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives
title_full_unstemmed The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives
title_short The Diagnostic Process for Children with Autism Spectrum Disorder: A Preliminary Study of Jordanian Parents’ Perspectives
title_sort diagnostic process for children with autism spectrum disorder: a preliminary study of jordanian parents’ perspectives
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10453648/
https://www.ncbi.nlm.nih.gov/pubmed/37628393
http://dx.doi.org/10.3390/children10081394
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