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Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation
Introduction: In neonatology, multiple pregnancies are common. Unfortunately, it is not rare for one baby to die. Communication with parents in these circumstances has been demonstrated to be sub-optimal. Methods: Two educational programs were evaluated with pre- and post-course surveys, questionnai...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10453894/ https://www.ncbi.nlm.nih.gov/pubmed/37628406 http://dx.doi.org/10.3390/children10081407 |
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author | Boutillier, Béatrice Embleton, Nicholas D. Bélanger, Sophie Bigras-Mercier, Alexie Larone Juneau, Audrey Barrington, Keith J. Janvier, Annie |
author_facet | Boutillier, Béatrice Embleton, Nicholas D. Bélanger, Sophie Bigras-Mercier, Alexie Larone Juneau, Audrey Barrington, Keith J. Janvier, Annie |
author_sort | Boutillier, Béatrice |
collection | PubMed |
description | Introduction: In neonatology, multiple pregnancies are common. Unfortunately, it is not rare for one baby to die. Communication with parents in these circumstances has been demonstrated to be sub-optimal. Methods: Two educational programs were evaluated with pre- and post-course surveys, questionnaires administered to participants, and audits. Results: In the online Butterfly project (UK; n = 734 participants), all participants reported that the training exceeded or met their expectations, 97% reported they learned new skills, and 48% had already applied them. Participants expressed gratitude in their open-ended answers: “I feel a lot more confident in supporting parents in this situation”. In the Ribbon project (workshop for neonatal clinicians, Quebec; n = 242), 97% were satisfied with the training and reported feeling more comfortable caring for bereaved parents. Knowledge improved pre–post training. Audits revealed that 100% of cases were identified on the incubator and the baby’s/babies’ admission card, all changed rooms after the death of their co-twin/triplet, and all had the name of their co-twin/triplet on the discharge summary. All clinicians (55) knew what the ribbon symbol meant when asked during surprise audits at the bedside. Conclusion: Different educational strategies to optimize communication with families after the perinatal loss of a co-twin are appreciated and have a positive impact. |
format | Online Article Text |
id | pubmed-10453894 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-104538942023-08-26 Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation Boutillier, Béatrice Embleton, Nicholas D. Bélanger, Sophie Bigras-Mercier, Alexie Larone Juneau, Audrey Barrington, Keith J. Janvier, Annie Children (Basel) Article Introduction: In neonatology, multiple pregnancies are common. Unfortunately, it is not rare for one baby to die. Communication with parents in these circumstances has been demonstrated to be sub-optimal. Methods: Two educational programs were evaluated with pre- and post-course surveys, questionnaires administered to participants, and audits. Results: In the online Butterfly project (UK; n = 734 participants), all participants reported that the training exceeded or met their expectations, 97% reported they learned new skills, and 48% had already applied them. Participants expressed gratitude in their open-ended answers: “I feel a lot more confident in supporting parents in this situation”. In the Ribbon project (workshop for neonatal clinicians, Quebec; n = 242), 97% were satisfied with the training and reported feeling more comfortable caring for bereaved parents. Knowledge improved pre–post training. Audits revealed that 100% of cases were identified on the incubator and the baby’s/babies’ admission card, all changed rooms after the death of their co-twin/triplet, and all had the name of their co-twin/triplet on the discharge summary. All clinicians (55) knew what the ribbon symbol meant when asked during surprise audits at the bedside. Conclusion: Different educational strategies to optimize communication with families after the perinatal loss of a co-twin are appreciated and have a positive impact. MDPI 2023-08-18 /pmc/articles/PMC10453894/ /pubmed/37628406 http://dx.doi.org/10.3390/children10081407 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Boutillier, Béatrice Embleton, Nicholas D. Bélanger, Sophie Bigras-Mercier, Alexie Larone Juneau, Audrey Barrington, Keith J. Janvier, Annie Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation |
title | Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation |
title_full | Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation |
title_fullStr | Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation |
title_full_unstemmed | Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation |
title_short | Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation |
title_sort | butterflies and ribbons: supporting families experiencing perinatal loss in multiple gestation |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10453894/ https://www.ncbi.nlm.nih.gov/pubmed/37628406 http://dx.doi.org/10.3390/children10081407 |
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