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Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept

OBJECTIVE: Patient-reported outcome measures (PROMs) are critical to drive patient-centered care and to understanding patients’ perspectives on their health status, quality of life, and the overall effectiveness of the care they receive. PROMs are increasingly being used in clinical and research set...

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Autores principales: Espinoza, Juan, Tut, Maurice, Shah, Payal, Kingsbury, Paul, Nagaraj, Gayathri, Meeker, Daniella, Bahroos, Neil
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10463552/
https://www.ncbi.nlm.nih.gov/pubmed/37649989
http://dx.doi.org/10.1093/jamiaopen/ooad074
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author Espinoza, Juan
Tut, Maurice
Shah, Payal
Kingsbury, Paul
Nagaraj, Gayathri
Meeker, Daniella
Bahroos, Neil
author_facet Espinoza, Juan
Tut, Maurice
Shah, Payal
Kingsbury, Paul
Nagaraj, Gayathri
Meeker, Daniella
Bahroos, Neil
author_sort Espinoza, Juan
collection PubMed
description OBJECTIVE: Patient-reported outcome measures (PROMs) are critical to drive patient-centered care and to understanding patients’ perspectives on their health status, quality of life, and the overall effectiveness of the care they receive. PROMs are increasingly being used in clinical and research settings, but the mechanisms to aggregate data from different systems can be cumbersome. MATERIALS AND METHODS: As part of an FDA Real-World Evidence demonstration project, we enriched routine care clinical data from our Cerner electronic health record (EHR) with PROMs collected using REDCap. We used SSIS, sFTP, and the REDCap Application Programming Interface to aggregate both data sources into the Cerner HealtheIntent Population Health Platform. RESULTS: We successfully built dashboards, reports, and datasets containing both REDCap and EHR data collected prospectively. DISCUSSION: This technically straightforward approach using commonly available clinical and research tools can be readily adopted and adapted by others to better integrate PROMs with clinical data sources.
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spelling pubmed-104635522023-08-30 Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept Espinoza, Juan Tut, Maurice Shah, Payal Kingsbury, Paul Nagaraj, Gayathri Meeker, Daniella Bahroos, Neil JAMIA Open Brief Communications OBJECTIVE: Patient-reported outcome measures (PROMs) are critical to drive patient-centered care and to understanding patients’ perspectives on their health status, quality of life, and the overall effectiveness of the care they receive. PROMs are increasingly being used in clinical and research settings, but the mechanisms to aggregate data from different systems can be cumbersome. MATERIALS AND METHODS: As part of an FDA Real-World Evidence demonstration project, we enriched routine care clinical data from our Cerner electronic health record (EHR) with PROMs collected using REDCap. We used SSIS, sFTP, and the REDCap Application Programming Interface to aggregate both data sources into the Cerner HealtheIntent Population Health Platform. RESULTS: We successfully built dashboards, reports, and datasets containing both REDCap and EHR data collected prospectively. DISCUSSION: This technically straightforward approach using commonly available clinical and research tools can be readily adopted and adapted by others to better integrate PROMs with clinical data sources. Oxford University Press 2023-08-29 /pmc/articles/PMC10463552/ /pubmed/37649989 http://dx.doi.org/10.1093/jamiaopen/ooad074 Text en © The Author(s) 2023. Published by Oxford University Press on behalf of the American Medical Informatics Association. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Brief Communications
Espinoza, Juan
Tut, Maurice
Shah, Payal
Kingsbury, Paul
Nagaraj, Gayathri
Meeker, Daniella
Bahroos, Neil
Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept
title Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept
title_full Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept
title_fullStr Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept
title_full_unstemmed Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept
title_short Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept
title_sort integrating redcap patient-reported outcomes with the healtheintent population health platform: proof of concept
topic Brief Communications
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10463552/
https://www.ncbi.nlm.nih.gov/pubmed/37649989
http://dx.doi.org/10.1093/jamiaopen/ooad074
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