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Integrating community voices in the research continuum: Perspectives on a consultation service

The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Sur...

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Detalles Bibliográficos
Autores principales: Evans, Crystal D., Nanda, Joy P., Ouyang, Pamela, Bone, Lee, Byiringiro, Samuel, Lacanienta, Cyd, Clark, Roger, Weston, Christine, Han, Hae-Ra, Terkowitz, Mia, Bates-Hopkins, Barbara, Galiatsatos, Panagis, Xu, Ashley Jingzhi, Stevens, Sarah, Himmelfarb, Cheryl R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10465313/
https://www.ncbi.nlm.nih.gov/pubmed/37654776
http://dx.doi.org/10.1017/cts.2023.600
Descripción
Sumario:The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009–2017) to 114 (2020–2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.