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Integrating community voices in the research continuum: Perspectives on a consultation service
The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Sur...
Autores principales: | , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cambridge University Press
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10465313/ https://www.ncbi.nlm.nih.gov/pubmed/37654776 http://dx.doi.org/10.1017/cts.2023.600 |
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author | Evans, Crystal D. Nanda, Joy P. Ouyang, Pamela Bone, Lee Byiringiro, Samuel Lacanienta, Cyd Clark, Roger Weston, Christine Han, Hae-Ra Terkowitz, Mia Bates-Hopkins, Barbara Galiatsatos, Panagis Xu, Ashley Jingzhi Stevens, Sarah Himmelfarb, Cheryl R. |
author_facet | Evans, Crystal D. Nanda, Joy P. Ouyang, Pamela Bone, Lee Byiringiro, Samuel Lacanienta, Cyd Clark, Roger Weston, Christine Han, Hae-Ra Terkowitz, Mia Bates-Hopkins, Barbara Galiatsatos, Panagis Xu, Ashley Jingzhi Stevens, Sarah Himmelfarb, Cheryl R. |
author_sort | Evans, Crystal D. |
collection | PubMed |
description | The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009–2017) to 114 (2020–2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research. |
format | Online Article Text |
id | pubmed-10465313 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Cambridge University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-104653132023-08-31 Integrating community voices in the research continuum: Perspectives on a consultation service Evans, Crystal D. Nanda, Joy P. Ouyang, Pamela Bone, Lee Byiringiro, Samuel Lacanienta, Cyd Clark, Roger Weston, Christine Han, Hae-Ra Terkowitz, Mia Bates-Hopkins, Barbara Galiatsatos, Panagis Xu, Ashley Jingzhi Stevens, Sarah Himmelfarb, Cheryl R. J Clin Transl Sci Brief Report The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009–2017) to 114 (2020–2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research. Cambridge University Press 2023-07-28 /pmc/articles/PMC10465313/ /pubmed/37654776 http://dx.doi.org/10.1017/cts.2023.600 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited. |
spellingShingle | Brief Report Evans, Crystal D. Nanda, Joy P. Ouyang, Pamela Bone, Lee Byiringiro, Samuel Lacanienta, Cyd Clark, Roger Weston, Christine Han, Hae-Ra Terkowitz, Mia Bates-Hopkins, Barbara Galiatsatos, Panagis Xu, Ashley Jingzhi Stevens, Sarah Himmelfarb, Cheryl R. Integrating community voices in the research continuum: Perspectives on a consultation service |
title | Integrating community voices in the research continuum: Perspectives on a consultation service |
title_full | Integrating community voices in the research continuum: Perspectives on a consultation service |
title_fullStr | Integrating community voices in the research continuum: Perspectives on a consultation service |
title_full_unstemmed | Integrating community voices in the research continuum: Perspectives on a consultation service |
title_short | Integrating community voices in the research continuum: Perspectives on a consultation service |
title_sort | integrating community voices in the research continuum: perspectives on a consultation service |
topic | Brief Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10465313/ https://www.ncbi.nlm.nih.gov/pubmed/37654776 http://dx.doi.org/10.1017/cts.2023.600 |
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