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Integrating community voices in the research continuum: Perspectives on a consultation service

The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Sur...

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Autores principales: Evans, Crystal D., Nanda, Joy P., Ouyang, Pamela, Bone, Lee, Byiringiro, Samuel, Lacanienta, Cyd, Clark, Roger, Weston, Christine, Han, Hae-Ra, Terkowitz, Mia, Bates-Hopkins, Barbara, Galiatsatos, Panagis, Xu, Ashley Jingzhi, Stevens, Sarah, Himmelfarb, Cheryl R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10465313/
https://www.ncbi.nlm.nih.gov/pubmed/37654776
http://dx.doi.org/10.1017/cts.2023.600
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author Evans, Crystal D.
Nanda, Joy P.
Ouyang, Pamela
Bone, Lee
Byiringiro, Samuel
Lacanienta, Cyd
Clark, Roger
Weston, Christine
Han, Hae-Ra
Terkowitz, Mia
Bates-Hopkins, Barbara
Galiatsatos, Panagis
Xu, Ashley Jingzhi
Stevens, Sarah
Himmelfarb, Cheryl R.
author_facet Evans, Crystal D.
Nanda, Joy P.
Ouyang, Pamela
Bone, Lee
Byiringiro, Samuel
Lacanienta, Cyd
Clark, Roger
Weston, Christine
Han, Hae-Ra
Terkowitz, Mia
Bates-Hopkins, Barbara
Galiatsatos, Panagis
Xu, Ashley Jingzhi
Stevens, Sarah
Himmelfarb, Cheryl R.
author_sort Evans, Crystal D.
collection PubMed
description The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009–2017) to 114 (2020–2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.
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spelling pubmed-104653132023-08-31 Integrating community voices in the research continuum: Perspectives on a consultation service Evans, Crystal D. Nanda, Joy P. Ouyang, Pamela Bone, Lee Byiringiro, Samuel Lacanienta, Cyd Clark, Roger Weston, Christine Han, Hae-Ra Terkowitz, Mia Bates-Hopkins, Barbara Galiatsatos, Panagis Xu, Ashley Jingzhi Stevens, Sarah Himmelfarb, Cheryl R. J Clin Transl Sci Brief Report The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009–2017) to 114 (2020–2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research. Cambridge University Press 2023-07-28 /pmc/articles/PMC10465313/ /pubmed/37654776 http://dx.doi.org/10.1017/cts.2023.600 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
spellingShingle Brief Report
Evans, Crystal D.
Nanda, Joy P.
Ouyang, Pamela
Bone, Lee
Byiringiro, Samuel
Lacanienta, Cyd
Clark, Roger
Weston, Christine
Han, Hae-Ra
Terkowitz, Mia
Bates-Hopkins, Barbara
Galiatsatos, Panagis
Xu, Ashley Jingzhi
Stevens, Sarah
Himmelfarb, Cheryl R.
Integrating community voices in the research continuum: Perspectives on a consultation service
title Integrating community voices in the research continuum: Perspectives on a consultation service
title_full Integrating community voices in the research continuum: Perspectives on a consultation service
title_fullStr Integrating community voices in the research continuum: Perspectives on a consultation service
title_full_unstemmed Integrating community voices in the research continuum: Perspectives on a consultation service
title_short Integrating community voices in the research continuum: Perspectives on a consultation service
title_sort integrating community voices in the research continuum: perspectives on a consultation service
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10465313/
https://www.ncbi.nlm.nih.gov/pubmed/37654776
http://dx.doi.org/10.1017/cts.2023.600
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