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Overcoming challenges in rare disease registry integration using the semantic web - a clinical research perspective
The growing number of disease-specific patient registries for rare diseases has highlighted the need for registry interoperability and data linkage, leading to large-scale rare disease data integration projects using Semantic Web based solutions. These technologies may be difficult to grasp for rare...
Autores principales: | Gisslander, Karl, Mohammad, Aladdin J, Vaglio, Augusto, Little, Mark A |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10466902/ https://www.ncbi.nlm.nih.gov/pubmed/37644439 http://dx.doi.org/10.1186/s13023-023-02841-z |
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