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Navigating Life With Primary Mitochondrial Myopathies: The Importance of the Patient Voice and Implications for Clinical Practice

Primary mitochondrial myopathies (PMM) are rare disorders with diverse and progressive symptom presentations that cause a substantial, detrimental impact on the quality of life of patients and their caregivers. The burden of symptoms is compounded by their visibility and their unpredictable, progres...

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Detalles Bibliográficos
Autores principales: Moore, Margaret, Yeske, Philip, Parikh, Sumit
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10467167/
https://www.ncbi.nlm.nih.gov/pubmed/37646180
http://dx.doi.org/10.1177/21501319231193875