Voices lost: where is the person in evaluating a palliative approach to care?

Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stan...

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Autores principales: Sawatzky, Richard, Porterfield, Pat, Donald, Erin, Tayler, Carolyn, Stajduhar, Kelli, Thorne, Sally
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10467210/
https://www.ncbi.nlm.nih.gov/pubmed/37654732
http://dx.doi.org/10.1177/26323524231193041
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author Sawatzky, Richard
Porterfield, Pat
Donald, Erin
Tayler, Carolyn
Stajduhar, Kelli
Thorne, Sally
author_facet Sawatzky, Richard
Porterfield, Pat
Donald, Erin
Tayler, Carolyn
Stajduhar, Kelli
Thorne, Sally
author_sort Sawatzky, Richard
collection PubMed
description Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stance. Using a narrative review approach, we critically reflected on how the experiences, priorities and concerns of patients and family are represented, or not represented, in evaluations of a palliative approach. We were guided by the following questions: (1) What types of outcomes and indicators are commonly used to evaluate a palliative approach? (2) Whose perspectives are represented in current evaluations of a palliative approach? And (3) What are the foci of evaluation in this body of research? We observed that the evaluations of a palliative approach are commonly based on indicators of its implementation and predominantly reflect the perspectives of healthcare providers and healthcare systems, rather than patients or family. Although evaluations focused on healthcare providers and systems are important for integrating a palliative approach, there is concern that the essence of person-centredness is lost when the perspectives of patients and families about their healthcare needs, outcomes and experiences are not consistently measured as the ultimate goal of care. There is a need for more emphasis on evaluation practices that value person-centred outcomes, in addition to outcomes oriented to the needs of healthcare providers and systems.
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spelling pubmed-104672102023-08-31 Voices lost: where is the person in evaluating a palliative approach to care? Sawatzky, Richard Porterfield, Pat Donald, Erin Tayler, Carolyn Stajduhar, Kelli Thorne, Sally Palliat Care Soc Pract Review Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stance. Using a narrative review approach, we critically reflected on how the experiences, priorities and concerns of patients and family are represented, or not represented, in evaluations of a palliative approach. We were guided by the following questions: (1) What types of outcomes and indicators are commonly used to evaluate a palliative approach? (2) Whose perspectives are represented in current evaluations of a palliative approach? And (3) What are the foci of evaluation in this body of research? We observed that the evaluations of a palliative approach are commonly based on indicators of its implementation and predominantly reflect the perspectives of healthcare providers and healthcare systems, rather than patients or family. Although evaluations focused on healthcare providers and systems are important for integrating a palliative approach, there is concern that the essence of person-centredness is lost when the perspectives of patients and families about their healthcare needs, outcomes and experiences are not consistently measured as the ultimate goal of care. There is a need for more emphasis on evaluation practices that value person-centred outcomes, in addition to outcomes oriented to the needs of healthcare providers and systems. SAGE Publications 2023-08-28 /pmc/articles/PMC10467210/ /pubmed/37654732 http://dx.doi.org/10.1177/26323524231193041 Text en © The Author(s), 2023 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Review
Sawatzky, Richard
Porterfield, Pat
Donald, Erin
Tayler, Carolyn
Stajduhar, Kelli
Thorne, Sally
Voices lost: where is the person in evaluating a palliative approach to care?
title Voices lost: where is the person in evaluating a palliative approach to care?
title_full Voices lost: where is the person in evaluating a palliative approach to care?
title_fullStr Voices lost: where is the person in evaluating a palliative approach to care?
title_full_unstemmed Voices lost: where is the person in evaluating a palliative approach to care?
title_short Voices lost: where is the person in evaluating a palliative approach to care?
title_sort voices lost: where is the person in evaluating a palliative approach to care?
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10467210/
https://www.ncbi.nlm.nih.gov/pubmed/37654732
http://dx.doi.org/10.1177/26323524231193041
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