Voices lost: where is the person in evaluating a palliative approach to care?
Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stan...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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SAGE Publications
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10467210/ https://www.ncbi.nlm.nih.gov/pubmed/37654732 http://dx.doi.org/10.1177/26323524231193041 |
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author | Sawatzky, Richard Porterfield, Pat Donald, Erin Tayler, Carolyn Stajduhar, Kelli Thorne, Sally |
author_facet | Sawatzky, Richard Porterfield, Pat Donald, Erin Tayler, Carolyn Stajduhar, Kelli Thorne, Sally |
author_sort | Sawatzky, Richard |
collection | PubMed |
description | Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stance. Using a narrative review approach, we critically reflected on how the experiences, priorities and concerns of patients and family are represented, or not represented, in evaluations of a palliative approach. We were guided by the following questions: (1) What types of outcomes and indicators are commonly used to evaluate a palliative approach? (2) Whose perspectives are represented in current evaluations of a palliative approach? And (3) What are the foci of evaluation in this body of research? We observed that the evaluations of a palliative approach are commonly based on indicators of its implementation and predominantly reflect the perspectives of healthcare providers and healthcare systems, rather than patients or family. Although evaluations focused on healthcare providers and systems are important for integrating a palliative approach, there is concern that the essence of person-centredness is lost when the perspectives of patients and families about their healthcare needs, outcomes and experiences are not consistently measured as the ultimate goal of care. There is a need for more emphasis on evaluation practices that value person-centred outcomes, in addition to outcomes oriented to the needs of healthcare providers and systems. |
format | Online Article Text |
id | pubmed-10467210 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-104672102023-08-31 Voices lost: where is the person in evaluating a palliative approach to care? Sawatzky, Richard Porterfield, Pat Donald, Erin Tayler, Carolyn Stajduhar, Kelli Thorne, Sally Palliat Care Soc Pract Review Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stance. Using a narrative review approach, we critically reflected on how the experiences, priorities and concerns of patients and family are represented, or not represented, in evaluations of a palliative approach. We were guided by the following questions: (1) What types of outcomes and indicators are commonly used to evaluate a palliative approach? (2) Whose perspectives are represented in current evaluations of a palliative approach? And (3) What are the foci of evaluation in this body of research? We observed that the evaluations of a palliative approach are commonly based on indicators of its implementation and predominantly reflect the perspectives of healthcare providers and healthcare systems, rather than patients or family. Although evaluations focused on healthcare providers and systems are important for integrating a palliative approach, there is concern that the essence of person-centredness is lost when the perspectives of patients and families about their healthcare needs, outcomes and experiences are not consistently measured as the ultimate goal of care. There is a need for more emphasis on evaluation practices that value person-centred outcomes, in addition to outcomes oriented to the needs of healthcare providers and systems. SAGE Publications 2023-08-28 /pmc/articles/PMC10467210/ /pubmed/37654732 http://dx.doi.org/10.1177/26323524231193041 Text en © The Author(s), 2023 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Review Sawatzky, Richard Porterfield, Pat Donald, Erin Tayler, Carolyn Stajduhar, Kelli Thorne, Sally Voices lost: where is the person in evaluating a palliative approach to care? |
title | Voices lost: where is the person in evaluating a palliative approach to care? |
title_full | Voices lost: where is the person in evaluating a palliative approach to care? |
title_fullStr | Voices lost: where is the person in evaluating a palliative approach to care? |
title_full_unstemmed | Voices lost: where is the person in evaluating a palliative approach to care? |
title_short | Voices lost: where is the person in evaluating a palliative approach to care? |
title_sort | voices lost: where is the person in evaluating a palliative approach to care? |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10467210/ https://www.ncbi.nlm.nih.gov/pubmed/37654732 http://dx.doi.org/10.1177/26323524231193041 |
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