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Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians

INTRODUCTION: Vascular anomalies (VAs) are rare conditions and affected patients often experience a difficult patient journey. Timely diagnosis is only possible if primary caregivers are aware of the anomalies and are connected with dedicated specialists. Aim of our survey was to investigate the kno...

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Autores principales: Gasparella, Paolo, Senica, Simone O., Singer, Georg, Banfi, Chiara, Flucher, Christina, Beqo, Besiana P., Till, Holger, Haxhija, Emir Q.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10473968/
https://www.ncbi.nlm.nih.gov/pubmed/37664549
http://dx.doi.org/10.3389/fped.2023.1216460
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author Gasparella, Paolo
Senica, Simone O.
Singer, Georg
Banfi, Chiara
Flucher, Christina
Beqo, Besiana P.
Till, Holger
Haxhija, Emir Q.
author_facet Gasparella, Paolo
Senica, Simone O.
Singer, Georg
Banfi, Chiara
Flucher, Christina
Beqo, Besiana P.
Till, Holger
Haxhija, Emir Q.
author_sort Gasparella, Paolo
collection PubMed
description INTRODUCTION: Vascular anomalies (VAs) are rare conditions and affected patients often experience a difficult patient journey. Timely diagnosis is only possible if primary caregivers are aware of the anomalies and are connected with dedicated specialists. Aim of our survey was to investigate the knowledge about diagnostic and therapeutic possibilities for children with VAs, and the existing networking among primary pediatric caregivers in Austria. METHODS: Primary care pediatricians in Austria were invited to complete an online questionnaire consisting of 28 questions focusing on pediatric VAs. RESULTS: Out of 373 invited pediatricians 93 (25%) returned the questionnaires, 86 of which were complete. Most physicians (39/93 42%) answered that they see between 15 and 30 patients with infantile hemangiomas per year. Vascular malformations are rarely treated in the primary care setting; most primary care pediatricians (58/86, 67%) reported that they currently treat fewer than 5 patients with such type of VAs. There was unequivocal agreement among the participants (84/86, 98%) on the need to establish a network of specialists and a registry dedicated to pediatric VAs. CONCLUSIONS: This survey represents the first study shedding light on the awareness of VAs among Austrian pediatricians and can serve as a basis for future investigations and advances in the management of these conditions in Austria and other countries with a similar healthcare setting.
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spelling pubmed-104739682023-09-03 Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians Gasparella, Paolo Senica, Simone O. Singer, Georg Banfi, Chiara Flucher, Christina Beqo, Besiana P. Till, Holger Haxhija, Emir Q. Front Pediatr Pediatrics INTRODUCTION: Vascular anomalies (VAs) are rare conditions and affected patients often experience a difficult patient journey. Timely diagnosis is only possible if primary caregivers are aware of the anomalies and are connected with dedicated specialists. Aim of our survey was to investigate the knowledge about diagnostic and therapeutic possibilities for children with VAs, and the existing networking among primary pediatric caregivers in Austria. METHODS: Primary care pediatricians in Austria were invited to complete an online questionnaire consisting of 28 questions focusing on pediatric VAs. RESULTS: Out of 373 invited pediatricians 93 (25%) returned the questionnaires, 86 of which were complete. Most physicians (39/93 42%) answered that they see between 15 and 30 patients with infantile hemangiomas per year. Vascular malformations are rarely treated in the primary care setting; most primary care pediatricians (58/86, 67%) reported that they currently treat fewer than 5 patients with such type of VAs. There was unequivocal agreement among the participants (84/86, 98%) on the need to establish a network of specialists and a registry dedicated to pediatric VAs. CONCLUSIONS: This survey represents the first study shedding light on the awareness of VAs among Austrian pediatricians and can serve as a basis for future investigations and advances in the management of these conditions in Austria and other countries with a similar healthcare setting. Frontiers Media S.A. 2023-08-17 /pmc/articles/PMC10473968/ /pubmed/37664549 http://dx.doi.org/10.3389/fped.2023.1216460 Text en © 2023 Gasparella, Senica, Singer, Banfi, Flucher, Beqo, Till and Haxhija. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (https://creativecommons.org/licenses/by/4.0/) . The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Pediatrics
Gasparella, Paolo
Senica, Simone O.
Singer, Georg
Banfi, Chiara
Flucher, Christina
Beqo, Besiana P.
Till, Holger
Haxhija, Emir Q.
Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians
title Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians
title_full Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians
title_fullStr Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians
title_full_unstemmed Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians
title_short Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians
title_sort pediatric vascular anomalies in austria. where are we at? a survey among primary care pediatricians
topic Pediatrics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10473968/
https://www.ncbi.nlm.nih.gov/pubmed/37664549
http://dx.doi.org/10.3389/fped.2023.1216460
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