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Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by ex...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10476121/ https://www.ncbi.nlm.nih.gov/pubmed/37652565 http://dx.doi.org/10.1136/bmjgh-2022-011671 |
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author | Pillai, Pooja Rawat, Meenal Jain, Sumeet Martin, Rachelle Anne Shelly, Kakul Mathias, Kaaren |
author_facet | Pillai, Pooja Rawat, Meenal Jain, Sumeet Martin, Rachelle Anne Shelly, Kakul Mathias, Kaaren |
author_sort | Pillai, Pooja |
collection | PubMed |
description | Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged? |
format | Online Article Text |
id | pubmed-10476121 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-104761212023-09-05 Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience Pillai, Pooja Rawat, Meenal Jain, Sumeet Martin, Rachelle Anne Shelly, Kakul Mathias, Kaaren BMJ Glob Health Practice Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged? BMJ Publishing Group 2023-08-31 /pmc/articles/PMC10476121/ /pubmed/37652565 http://dx.doi.org/10.1136/bmjgh-2022-011671 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/. |
spellingShingle | Practice Pillai, Pooja Rawat, Meenal Jain, Sumeet Martin, Rachelle Anne Shelly, Kakul Mathias, Kaaren Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience |
title | Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience |
title_full | Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience |
title_fullStr | Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience |
title_full_unstemmed | Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience |
title_short | Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience |
title_sort | developing relevant community mental health programmes in north india: five questions we ask when co-producing knowledge with experts by experience |
topic | Practice |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10476121/ https://www.ncbi.nlm.nih.gov/pubmed/37652565 http://dx.doi.org/10.1136/bmjgh-2022-011671 |
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