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Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience

Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by ex...

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Autores principales: Pillai, Pooja, Rawat, Meenal, Jain, Sumeet, Martin, Rachelle Anne, Shelly, Kakul, Mathias, Kaaren
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10476121/
https://www.ncbi.nlm.nih.gov/pubmed/37652565
http://dx.doi.org/10.1136/bmjgh-2022-011671
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author Pillai, Pooja
Rawat, Meenal
Jain, Sumeet
Martin, Rachelle Anne
Shelly, Kakul
Mathias, Kaaren
author_facet Pillai, Pooja
Rawat, Meenal
Jain, Sumeet
Martin, Rachelle Anne
Shelly, Kakul
Mathias, Kaaren
author_sort Pillai, Pooja
collection PubMed
description Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged?
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spelling pubmed-104761212023-09-05 Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience Pillai, Pooja Rawat, Meenal Jain, Sumeet Martin, Rachelle Anne Shelly, Kakul Mathias, Kaaren BMJ Glob Health Practice Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged? BMJ Publishing Group 2023-08-31 /pmc/articles/PMC10476121/ /pubmed/37652565 http://dx.doi.org/10.1136/bmjgh-2022-011671 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Practice
Pillai, Pooja
Rawat, Meenal
Jain, Sumeet
Martin, Rachelle Anne
Shelly, Kakul
Mathias, Kaaren
Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
title Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
title_full Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
title_fullStr Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
title_full_unstemmed Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
title_short Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
title_sort developing relevant community mental health programmes in north india: five questions we ask when co-producing knowledge with experts by experience
topic Practice
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10476121/
https://www.ncbi.nlm.nih.gov/pubmed/37652565
http://dx.doi.org/10.1136/bmjgh-2022-011671
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