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“I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care

Portugal has been identified as the European country with the most rapid evolution of Pediatric Palliative Care provision, where approximately 7800 children have life-limiting conditions. This is a highly complex experience not only for the children and their parental caregivers, but also for their...

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Detalles Bibliográficos
Autores principales: Nogueira, Alexandra Jóni, Ribeiro, Maria Teresa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10486921/
https://www.ncbi.nlm.nih.gov/pubmed/37685425
http://dx.doi.org/10.3390/healthcare11172391
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author Nogueira, Alexandra Jóni
Ribeiro, Maria Teresa
author_facet Nogueira, Alexandra Jóni
Ribeiro, Maria Teresa
author_sort Nogueira, Alexandra Jóni
collection PubMed
description Portugal has been identified as the European country with the most rapid evolution of Pediatric Palliative Care provision, where approximately 7800 children have life-limiting conditions. This is a highly complex experience not only for the children and their parental caregivers, but also for their healthy siblings and grandparents. The present descriptive-exploratory study seeks to contribute to the understanding of the psychological experience of life-limiting conditions in grandparents. A total of 19 families, consisting of 15 grandmothers and 4 grandfathers, completed a sociodemographic and clinical data sheet and a semi-structured interview was conducted in which they shared their testimony. The results of the thematic analysis highlighted an integrated view on 10 important dimensions in the grandparental experience and promoted creative responses by means of their own perspective. However, it has some limitations, such as the small sample size and the data collection procedure via telephone. The results contribute to the design of specific intervention methodologies in an ecosystemic approach and suggest further research to explore more protective factors and communication with health professionals. For psychological intervention, it is suggested considering the identification of individual and family resources that contribute to the activation of key processes in resilience and posttraumatic growth.
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spelling pubmed-104869212023-09-09 “I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care Nogueira, Alexandra Jóni Ribeiro, Maria Teresa Healthcare (Basel) Article Portugal has been identified as the European country with the most rapid evolution of Pediatric Palliative Care provision, where approximately 7800 children have life-limiting conditions. This is a highly complex experience not only for the children and their parental caregivers, but also for their healthy siblings and grandparents. The present descriptive-exploratory study seeks to contribute to the understanding of the psychological experience of life-limiting conditions in grandparents. A total of 19 families, consisting of 15 grandmothers and 4 grandfathers, completed a sociodemographic and clinical data sheet and a semi-structured interview was conducted in which they shared their testimony. The results of the thematic analysis highlighted an integrated view on 10 important dimensions in the grandparental experience and promoted creative responses by means of their own perspective. However, it has some limitations, such as the small sample size and the data collection procedure via telephone. The results contribute to the design of specific intervention methodologies in an ecosystemic approach and suggest further research to explore more protective factors and communication with health professionals. For psychological intervention, it is suggested considering the identification of individual and family resources that contribute to the activation of key processes in resilience and posttraumatic growth. MDPI 2023-08-25 /pmc/articles/PMC10486921/ /pubmed/37685425 http://dx.doi.org/10.3390/healthcare11172391 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Nogueira, Alexandra Jóni
Ribeiro, Maria Teresa
“I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care
title “I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care
title_full “I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care
title_fullStr “I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care
title_full_unstemmed “I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care
title_short “I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care
title_sort “i’m afraid if this goes wrong… what will become of me?”: the psychological experience of grandparents in pediatric palliative care
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10486921/
https://www.ncbi.nlm.nih.gov/pubmed/37685425
http://dx.doi.org/10.3390/healthcare11172391
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