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Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description

While health services are expected to have public involvement in service (re)design, there is a dearth of evaluation of outcomes to inform policy and practice. There are major gaps in understanding why outcome evaluation is under-utilised. The aims of this interpretive descriptive study were to expl...

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Autores principales: Lloyd, Nicola, Hyett, Nerida, Kenny, Amanda
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10494479/
https://www.ncbi.nlm.nih.gov/pubmed/37548221
http://dx.doi.org/10.1177/10497323231191048
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author Lloyd, Nicola
Hyett, Nerida
Kenny, Amanda
author_facet Lloyd, Nicola
Hyett, Nerida
Kenny, Amanda
author_sort Lloyd, Nicola
collection PubMed
description While health services are expected to have public involvement in service (re)design, there is a dearth of evaluation of outcomes to inform policy and practice. There are major gaps in understanding why outcome evaluation is under-utilised. The aims of this interpretive descriptive study were to explore researcher participants’ experiences of and/or attitudes towards evaluating health service outcomes from public involvement in health service design in high-income countries. Additionally, the aims were to explore barriers and enablers of evaluation, and reasons for the use of evaluation tools or frameworks. Semi-structured interviews (n = 13) were conducted with researchers of published studies where the public was involved in designing health services. Using framework analysis, four themes were developed that captured participants’ experiences: Public involvement is hard – evaluation is harder; power, a diversity of agendas, and the invisible public; practical and methodological challenges; and genuineness and authenticity matter. Evaluation is driven by stakeholder requirements, including decision-makers, funding bodies, researchers, and academics, and evaluation tools are rarely used. The public is largely absent from the outcome evaluation agenda. There is a lack of commitment and clarity of purpose of public involvement and its evaluation. Outcome evaluation must be multi-layered and localised and reflect the purpose of public involvement, what constitutes success (and to whom), and use the most appropriate methods. Multi-level supports should include increased resources, such as funding, time, and expertise. Without improved evaluation, outcomes of investment in public involvement in health service design/redesign remain unknown.
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spelling pubmed-104944792023-09-12 Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description Lloyd, Nicola Hyett, Nerida Kenny, Amanda Qual Health Res Research Articles While health services are expected to have public involvement in service (re)design, there is a dearth of evaluation of outcomes to inform policy and practice. There are major gaps in understanding why outcome evaluation is under-utilised. The aims of this interpretive descriptive study were to explore researcher participants’ experiences of and/or attitudes towards evaluating health service outcomes from public involvement in health service design in high-income countries. Additionally, the aims were to explore barriers and enablers of evaluation, and reasons for the use of evaluation tools or frameworks. Semi-structured interviews (n = 13) were conducted with researchers of published studies where the public was involved in designing health services. Using framework analysis, four themes were developed that captured participants’ experiences: Public involvement is hard – evaluation is harder; power, a diversity of agendas, and the invisible public; practical and methodological challenges; and genuineness and authenticity matter. Evaluation is driven by stakeholder requirements, including decision-makers, funding bodies, researchers, and academics, and evaluation tools are rarely used. The public is largely absent from the outcome evaluation agenda. There is a lack of commitment and clarity of purpose of public involvement and its evaluation. Outcome evaluation must be multi-layered and localised and reflect the purpose of public involvement, what constitutes success (and to whom), and use the most appropriate methods. Multi-level supports should include increased resources, such as funding, time, and expertise. Without improved evaluation, outcomes of investment in public involvement in health service design/redesign remain unknown. SAGE Publications 2023-08-07 2023-09 /pmc/articles/PMC10494479/ /pubmed/37548221 http://dx.doi.org/10.1177/10497323231191048 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Articles
Lloyd, Nicola
Hyett, Nerida
Kenny, Amanda
Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description
title Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description
title_full Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description
title_fullStr Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description
title_full_unstemmed Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description
title_short Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description
title_sort barriers and enablers to evaluating outcomes from public involvement in health service design: an interpretive description
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10494479/
https://www.ncbi.nlm.nih.gov/pubmed/37548221
http://dx.doi.org/10.1177/10497323231191048
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