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Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury
Spinal cord injury (SCI) affects between 250,000–500,000 people globally each year. While the medical aspects of SCI have received considerable attention in the academic literature, discourse pertaining to its ethical implications is more limited. The experience of SCI is shaped by intersecting demo...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group UK
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10495258/ https://www.ncbi.nlm.nih.gov/pubmed/37072509 http://dx.doi.org/10.1038/s41393-023-00897-z |
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author | Nuechterlein, Anna Feng, Lydia Yehia, Alaa Illes, Judy |
author_facet | Nuechterlein, Anna Feng, Lydia Yehia, Alaa Illes, Judy |
author_sort | Nuechterlein, Anna |
collection | PubMed |
description | Spinal cord injury (SCI) affects between 250,000–500,000 people globally each year. While the medical aspects of SCI have received considerable attention in the academic literature, discourse pertaining to its ethical implications is more limited. The experience of SCI is shaped by intersecting demographic and identity factors such as gender, race, and culture that necessitate an intersectional and value-based approach to ethics-related research that is properly situated in context. Given this background, we conducted a content analysis of academic studies exploring the perspectives and priorities of individuals with SCI published in peer-reviewed journals in the decade between 2012–2021. Terms pertaining to SCI and ethics were combined in a search of two major publication databases. We documented overall publication patterns, recruitment and research methods, reporting of demographic variables, and ethics-related discourse. Seventy (70) papers met inclusion criteria and were categorized by their major foci. Findings reveal a gap in reporting of participant demographics, particularly with respect to race and ethnicity, geographic background, and household income. We discuss these person-centered themes and gaps that must be closed in the reporting and supporting of SCI research. |
format | Online Article Text |
id | pubmed-10495258 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Nature Publishing Group UK |
record_format | MEDLINE/PubMed |
spelling | pubmed-104952582023-09-13 Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury Nuechterlein, Anna Feng, Lydia Yehia, Alaa Illes, Judy Spinal Cord Review Article Spinal cord injury (SCI) affects between 250,000–500,000 people globally each year. While the medical aspects of SCI have received considerable attention in the academic literature, discourse pertaining to its ethical implications is more limited. The experience of SCI is shaped by intersecting demographic and identity factors such as gender, race, and culture that necessitate an intersectional and value-based approach to ethics-related research that is properly situated in context. Given this background, we conducted a content analysis of academic studies exploring the perspectives and priorities of individuals with SCI published in peer-reviewed journals in the decade between 2012–2021. Terms pertaining to SCI and ethics were combined in a search of two major publication databases. We documented overall publication patterns, recruitment and research methods, reporting of demographic variables, and ethics-related discourse. Seventy (70) papers met inclusion criteria and were categorized by their major foci. Findings reveal a gap in reporting of participant demographics, particularly with respect to race and ethnicity, geographic background, and household income. We discuss these person-centered themes and gaps that must be closed in the reporting and supporting of SCI research. Nature Publishing Group UK 2023-04-18 2023 /pmc/articles/PMC10495258/ /pubmed/37072509 http://dx.doi.org/10.1038/s41393-023-00897-z Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Review Article Nuechterlein, Anna Feng, Lydia Yehia, Alaa Illes, Judy Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury |
title | Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury |
title_full | Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury |
title_fullStr | Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury |
title_full_unstemmed | Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury |
title_short | Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury |
title_sort | strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury |
topic | Review Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10495258/ https://www.ncbi.nlm.nih.gov/pubmed/37072509 http://dx.doi.org/10.1038/s41393-023-00897-z |
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